Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Conditions

Fact sheets
See all - Disease index from A to Z

About

About us
Why share your data?
The Carenity team
The ambassadors
Partner associations
Contributors
The Science and Ethics Committee
Our scientific publications
Our commitments
Certifications and awards
Carenity in the news
Editorial policy
Code of conduct and privacy policy
Legal notice
Terms of use
Cookie management
Contact
Carenity for professionals

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Home
  • Forums
  • General forums
  • Living with ulcerative colitis
  • How do you deal with UC and romance and relationships
 Back
Living with ulcerative colitis

How do you deal with UC and romance and relationships

  •  81 views
  •  10 times supported
  •  9 comments
avatar exit

Unregistered member

01/22/2019 at 6:23 AM

Hi everyone,

I'm new to this group, but I was diagnosed with UC about 4 years ago. I am still working with my doctor (I just switched to a new GI specialist because I moved) to find a medication that actually manages my symptoms. I go on prednisone at least 3-5 times a year, so most likely I will start on Humera or something like it. 

Anyways, I really wanted to ask about how other people have dealt with UC symptoms within their romantic relationships. I'm 23, so the stigmas around having GI issues can be embarasing, even though I try so hard not to let it get to me. I'm dating a lot, but whenever I start to get close to anyone, it is super difficult for me to share about my UC. Especially when I have to leave a date early because of a flare up. I thought about waiting to date more seriously until I have this thing figured out, but I have realized I'll be living my whole life with it and it's not practical to wait to live my life because I struggle with a chronic condition. 

I guess I'm just hoping to hear what other people have done to help get over the fear of sharing this part of your life with someone else and how it worked/didn't. 

Thanks <3

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

All comments

avatar Sunflower

Sunflower

01/25/2019 at 6:37 PM

avatar Sunflower

Sunflower

Last activity on 05/02/2026 at 5:06 PM

Joined in 2019


1 comment posted | 1 in the Living with ulcerative colitis group


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

Hi everyone, 

I am new in this group. I was diagnosed UC for 3 years. I was almost OK  for the first 2 years. But recently it flare up so I went back to prenison. I'd like to your experience and opinions on the medication. Thanks.

Sunflower     


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-01-25 18:37:29

avatar ulc1231

ulc1231

01/30/2019 at 1:20 AM

Good advisor

avatar ulc1231

ulc1231

Last activity on 04/19/2023 at 1:52 PM

Joined in 2018


8 comments posted | 7 in the Living with ulcerative colitis group


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

@MadelineMcKay welcome to the forums and awesome question. As someone with UC for some few years (and older than you), I will try to ease your worries some... hopefully.

Do not think of your condition being a barrier to dating. Think of it as your own trait, and we all have traits: some people are chatty, some people are rude, some people have to use the restroom more often, some people may have bowel issues, some people may experience pain... etc. And your traits is what makes you, you! You want someone to love you for you! UC is not you... so don't let it be you... all the time!

As far as telling dates, I would say there is nothing wrong with telling them on the first date or a later date. We do that with all relationships... we do not tell everyone on the first date our favorite thing to do is lay in bed eating ice-cream watching friends all day, etc.

Happy to listen to you! 


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-01-30 01:20:20
avatar exit

Unregistered member

01/30/2019 at 4:04 AM

Thank you so much for replying! This is amazing advice. I really appreciate it. I’m going to try to implement this idea of my UC not being me, but being a trait of me, into my life. 

Thank you! 


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-01-30 04:04:42

avatar s1d934

s1d934

05/06/2019 at 4:42 AM

avatar s1d934

s1d934

Last activity on 01/16/2024 at 11:01 PM

Joined in 2018


14 comments posted | 11 in the Living with ulcerative colitis group


Rewards

  • Contributor

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Hey @MadelineMcKay‍ what are your thoughts on a male having this condition? I have this condition and have not been in a romantic relationship for some years, but it is a fear I have also.

I have not been in that situation, so just looking to see what your viewpoint is as a lady. I think maybe we hurt ourselves more worrying about.


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-05-06 04:42:50
avatar exit

Unregistered member

05/06/2019 at 5:47 AM

Hi @s1d934‍ :) I’ve learned a lot since I posted this question and I guess my best advice is to just embrace the condition and realize that the right person will understand and also embrace our condition. The best thing to do is just be honest with the people you let into your life when you’re ready. I feel like this is crappy (no pun intended) advice but it’s all I’ve got at the moment. 

I agree with you that worrying just makes it harder on ourselves. 


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-05-06 05:47:56
avatar exit

Unregistered member

05/06/2019 at 9:47 PM

I was diagnosed with UC Fours years ago as well. As far as telling someone about your chronic condition, it’s really up to you when you want to tell someone about UC. There’s nothing wrong with telling someone about your condition, it can be whenever your comfortable to tell


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2019-05-06 21:47:34
avatar exit

Unregistered member

Edited on 12/30/2020 at 3:05 PM

@MadelineMcKay  @s1d934Hello my name is Gloria. I have joined this group to help find tips and nutrition help for my husband who has UC that was brought on by stress about 8 yrs ago.  I met him in early 2020 and we started dating and got married later in the year. I wanted to let you know in our first conversation he told me he had UC so he always has to go to the bathroom so don't take offense if he has to cancel plans or spend hours (yes hours) in the bathroom. I was very concerned at first but he was honest about everything including his illness upfront and I accepted that . I have been married for a few months and yes he is always using the bathroom and we work around his flare ups but he is also the most amazing man I know and his UC is just an illness, it doesn't define our relationship, or our life. I love him dearly and I give him lots of butt massages because I swear his butt has to hurt being on the toilet that much! We find humor where we can and still do amazing things, we just make sure there is  bathroom close by. @    

From personal experience ( even though being a woman may make things more difficult) be honest with whomever you're interested in. Tell them what to expect given your severity and continue to work on yourself to make yourself an amazing partner besides the UC. My husband in an account executive , has a beautiful home, is an amazing friend, hilarious, and also happens to have UC. 

Hope this helps, 

 

Gloria


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2020-12-30 15:03:03
avatar exit

Unregistered member

12/30/2020 at 7:31 PM

Thank you! I’m so happy for you. I have actually been in an incredible relationship for just over a year now, and the honesty part you mention was crucial to me finally finding someone to trust with all parts of me! Thank you so much for sharing this. 
-Madeline


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2020-12-30 19:31:25
avatar exit

Unregistered member

Edited on 01/07/2021 at 5:56 AM

@s1d934 As a woman who is crazy in love with my man who has a severe case of UC, I can tell you that the right woman will love you and everything about you, including the difficulties of this disease. My boyfriend told me about a week into our dating, and said he would understand if it was too much for me to deal with. That made my heart melt even more. Three weeks into our relationship I took him to his colonoscopy appointment and helped him through it. He feels self-conscious sometimes, but he has nothing to worry about. When he thinks he’s the least attractive to me, like during flares that have him sprinting to the toilet several times an hour, or his abdomen swollen from inflammation...that’s when he’s the most endearing. Now, 2 years later I am so in love with him. My only fear is this disease progressing into cancer. His is advanced and shows signs that have his doctor concerned. I can’t imagine my life without him. I will do everything in my power to help him stay healthy (with food, exercise, and love) So ...in answer to your question, absolutely you should be open to love. The right person will be by your side and help you every step of the way. :)


How do you deal with UC and romance and relationships https://www.carenity.us/forum/other-discussions/living-with-ulcerative-colitis/how-do-you-deal-with-uc-and-romance-and-relationships-701 2021-01-07 05:51:02

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Survey

On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

Articles to discover...

Why do some people bruise so easily?

07/18/2026 | News

Why do some people bruise so easily?

When treatments cause sweating: a little-known side effect

07/11/2026 | News

When treatments cause sweating: a little-known side effect

Why are nanoparticles used in some medicines?

07/04/2026 | News

Why are nanoparticles used in some medicines?

Those daily energy slumps: What your biological clock is trying to tell you

06/27/2026 | News

Those daily energy slumps: What your biological clock is trying to tell you

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • Why share your data?
  • The Carenity team
  • The ambassadors
  • Partner associations
  • Contributors
  • The Science and Ethics Committee
  • Our scientific publications
  • Our commitments
  • Certifications and awards
  • Carenity in the news
  • Editorial policy
  • Code of conduct
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.