How do you handle fatigue caused by your psoriatic arthritis?

@Tutoang997 Hey, I completely understand what your son is going through, my fatigue eventually drove me to take a temporary break from work. I was about the same age as your son it sounds like so I understand the pressure he must be under. A doctor of mine once used an analogy with me that has really stuck: he said that you that to imagine that your life and energy are like a bowl of soup. Every activity we do takes a spoonful of energy to complete, and once you hit the bottom of the bowl there is no more and you need to rest. It sounds like your son is overworked and overwhelmed. Maybe explain this to him and help him figure out a way to plan his days so that he's not overworked? Has he spoken to his company about his condition? I know he may not want to, because I for sure didn't, but it can really help. If they know about it they may be able to make accommodations for him, or at least they'd be understanding if he needs to lighten his work load. 

I fully understand how your son must feel too. I am older, but the fatigue is taking over my life now and I can't really  control it. I love exercising and going for long walks (on or off the beach, haha) but the next day is killed from the pain so I can only rest. Only somebody with PA will understand how we feel. I hope your son can work with his company to find a flexible solution. Maybe he can work from home more often or they can reduce his hours. 

@Koobreybir7 @Dokosoat5 Thank you both for your replies. My wife and I have been so worried about him and just devastated that there's nothing we can do to help him. We were worried he was heading towards a burn out or breakdown. He managed to arrange with his boss to take a little time off this month as things are slower in August and he has an appointment with his doctor soon. I'm hoping the specialist will be able to change his medicines or help him find some strategies to cope it all. 

Hello everyone, 

Thank you for sharing your stories and experiences with us, this is what Carenity is all about. @Tutoang997‍  How is your son doing now? Has he been able to get in to see his rheumatologist?

For those who may not have seen this thread yet, do you experience extreme fatigue with your PA? How do you manage it?
@Fleekaiproot8844‍ @Hidden username‍ @Hidden username‍ @Nableecloul‍ @Shouroodi424‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Hidden username‍ @Saclastagloul11‍ @Hidden username‍ @Hoagoor45‍ @Woorunaithoun283‍ @Hidden username‍ @Frahayn‍ @Hidden username‍ @622Caipail‍ 

Feel free to share your stories and advice here! 

Take care,
Courtney

Good Afternoon Everyone,

How do I handle my RSA? First I try not to miss any doctor appointments. With the coronavirus last Thursday via video was the first time I saw my  rheumatologist sinc January. Every morning I take a warm bath about 20 minutes with Epson salt. I feel moving helps also. I was taking humria every 2 weeks. My doctor just increased it to every week. I’m really hoping it’s help with the  arthritis because it really works for my psoriasis. Aside from a little peeling on my palms I haven’t had a outbreak in a few years🙏🏼. I thank you for listening 💝

Kathy

I completely relate to this. As some have mentioned, you can't really understand the depth and impact of our fatigue without having PsA yourself. It affects your body and also your mind. For me just the simplest tasks can have me back in bed for the rest of the day or the following day. It's frustrating to live like that. Has anyone found anything that helps?

My doctor gave me Provigil for the severe fatigue.

Hi everyone,

I'm bringing this discussion back to the top because fatigue is such a common and difficult part of living with psoriatic arthritis, and it doesn’t always get talked about as much as pain or inflammation.

@Tutoang997, thank you again for opening this conversation and for speaking so honestly about your son’s experience, has anything changed for him since you last posted? I hope he’s found a bit more balance, and that you and your family are feeling more supported.

To anyone else in the community:

• How does fatigue show up in your daily life?
• Have you found anything that helps manage your energy better (meds, pacing, nutrition, routines)?
• How do you explain your fatigue to others when they don’t “see” it?

@Hoagoor45 @Saclastagloul11 @Hidden username @Hidden username @Shouroodi424 @Hidden username @Nableecloul @Fleekaiproot8844 @Drokookous244 @Groblish86 @Frahayn @Clibrung964 @Hidden username @52Jeablugri @Bleeheetul897 @Kukadoush @Breyplootraick4 @Blucroalet @Graistun @Hidden username @Brotraypeyng52 @24Faymeeplun @Vaicoatain5 @Tudroonees1508 @Gaicreygeash7089 @Sheloolabosh5804 @Preefreel889 @Hidden username @Loutreachair @Hidden username @Proodeat79 @Hidden username @80Beaver @Hidden username @Hidden username @Hidden username @Hidden username @Froofreymoulean @Hidden username @Hidden username @Hidden username @Plouhestayvaick644 @Leaclees32 @Brodachon2921 @Meatas9 @Veypayvos344 @Ceahing53 @Traybrait8690 @Heyceavat73 @0171Votroung @Naiwayl52 @0491Voocroblousaick @Lekooheys581 @Geydrigrooblou7598 @04Dayliblock @Beyfroomeyl38 @69Shavoupat @664Shodraysish @2Chetoar @Fadrayr07 @9562Preyfaigreyt @Sheetaing537 @Grupraplor04 @Chaclisho4 @Neyshoojoupeel6 @9Wuheas @Thaybrung696 @Narair649 @1512Goothaiwea @8344Gleytateyr @Fleatoayayng63 @Tikoor87 @Blugrecer105

Your experiences could really help others who are struggling quietly 💬

Looking forward to hearing your thoughts,
Somya from the Carenity team 🌼