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  • Introduction ♡♡
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Living with neurological conditions

Introduction ♡♡

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avatar bonkistobias

bonkistobias

04/20/2023 at 12:55 AM

avatar bonkistobias

bonkistobias

Last activity on 07/02/2025 at 9:33 PM

Joined in 2023


3 comments posted | 1 in the Living with neurological conditions group


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Hello! My name is Bonk/Tobias and I am new to this platform!

Let me introduce myself. I am 17 years old and I use they/he (transmasc nonbinary butch lesbian here). I am a junior in high school. I want to become an epidemiologist! I also am pagan and practice witchcraft. I love being in band, choir, and theatre. I am even one of the alto section leaders in my choir and I pride myself on that fact. I am also my school's GSA president

The condition I came here to seek support with is narcolepsy (specifically type two). I have started having symptoms shortly after getting COVID-19 my freshman year, and it exponentially worsened after marching band season my sophomore year. Initially, I thought it was chronic fatigue since that was being reported as an aftermath condition with COVID. However, I soon started having sleep attacks and I was seriously struggling. My PCP was the one who initially mentioned narcolepsy, and my junior year we started the process. After testing, it was pretty clear I was narcoleptic. It's hard for me to admit I am disabled, but I want to use the confusion and anxiety I have around my diagnosis to bring awareness to others.

I got my diagnosis of type two narcolepsy less than a month ago, and I still have a lot to learn. I started 100g modafinil three days ago and I have found I can already feel a lot better. I'm excited to meet others whom interests we have in common here!

Talking about interests, here are some of mine: witchcraft/paganism, pokemon, gaming, music, any kind of arts, LGBTQ+, women's, disability, and other rights activism, chucky/child's play, alternative fashion, etc

I am thrilled to talk to you all! ♡

- Bonk (they/he)

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avatar Polina.K

Polina.K

Community manager
04/20/2023 at 3:05 PM

Good advisor

avatar Polina.K

Polina.K

Community manager

Last activity on 08/18/2025 at 6:09 PM

Joined in 2023


138 comments posted | 1 in the Living with neurological conditions group

4 of their responses were helpful to members


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Hey @bonkistobias♡! I hope you are having a good day!

It is very nice to meet you! My name is Polina I am one of the community managers on the platform! I am sorry to hear about the challenges you have had with narcolepsy. I will try to tag some members who might want to share their thoughts on this condition and how they deal with it. It is great to hear about your interests! What is your favorite pokemon? :)

P.S You can rate your medications and read others comments on Carenity! Click here!

@Racquel25 @Stephenielennox @DeeKing @lnewell1gmail.com @ttnnkkrr @Monimac51 @Dwbrentsmom

Hey everyone! How are you?

Let's introduce ourselves and talk here! How has your journey with narcolepsy been lately? What can you advise someone recently diagnosed?

Take care,

Polina from the Carenity team


Introduction ♡♡ https://www.carenity.us/forum/other-discussions/living-with-neurological-diseases/introduction-5233 2023-04-20 15:05:46

avatar Creader8

Creader8

11/06/2023 at 3:26 AM

avatar Creader8

Creader8

Last activity on 11/06/2023 at 2:03 PM

Joined in 2023


2 comments posted | 1 in the Living with neurological conditions group


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Hi. I'm Christy. I am a Mom and Teacher. This is my 20th year teaching. It would have been my 24th year, but I had to take a four year hiatus. Got divorced and amazingly no more seizures. Mine are brought on by stress. Glad to have answers and control.

See the signature

Christy Reader


Introduction ♡♡ https://www.carenity.us/forum/other-discussions/living-with-neurological-diseases/introduction-5233 2023-11-06 03:26:35

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