- Home
- Forums
- General forums
- Living with Multiple Sclerosis
- I loved summer when I was young
I loved summer when I was young
- 28 views
- 1 support
- 7 comments
All comments
Graydraing9675
Good advisor
Graydraing9675
Last activity on 12/06/2022 at 3:49 PM
Joined in 2018
34 comments posted | 28 in the Living with Multiple Sclerosis group
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
i hear you summer is hell for me too now especially nowadays i feel summer is hotter than ever or maybe i never paid attention before when i was younger/before diagnosis but honestly, this year sees brutal and causes so much sadness that i can't do what i used to be able to do.
Cooshublayng
Good advisor
Cooshublayng
Last activity on 11/23/2022 at 9:27 AM
Joined in 2018
57 comments posted | 36 in the Living with Multiple Sclerosis group
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@Koameybloagoash you are not alone in this feeling. There are many others who can empathize with you. While, I am not in a wheelchair, I am very sensitive to heat. My family says my house is "cold" but for me it is perfect.
The heat can cause me to flare up in symptoms. Some years ago, when I would still maintain active, I had to monitor because even an increase in body temperature from exercise, I could feel the exacerbation in my neurologic symptoms.
I used to enjoy hot showers.
Heateprayr5
Good advisor
Heateprayr5
Last activity on 07/04/2022 at 1:29 PM
Joined in 2018
94 comments posted | 70 in the Living with Multiple Sclerosis group
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
-
Newsfeeder
@Koameybloagoash Same here. I can rarely stand the heat most days and tend to stay inside now because of it, which causes me to miss out on a lot and that itself is sad since I am a mom of two wonderful children. I miss out on so much with them during the summer.
Ms has definetly changed my life.
-Emma
See the signature
Just trying to get by..
Unregistered member
I used to love summer and going to the beach. I hate it now. It has been so hot this summer I dont go outside unless I have to. How can staying in the house and out if the heat still make me feel so bad? This heat makes me feel like I’m dieing a slow death!
Puseyr6
Good advisor
Puseyr6
Last activity on 04/15/2026 at 3:51 PM
Joined in 2018
39 comments posted | 32 in the Living with Multiple Sclerosis group
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Explorer
yeah we're all on the same boat with summers, although i don't recall summers being this hot! i stay indoors as much as i can get away with in the summer. or will just host gatherings in my backyard where i can go in and out as Iplease :)
5Fraweemoun
5Fraweemoun
Last activity on 12/27/2023 at 6:49 AM
Joined in 2018
15 comments posted | 13 in the Living with Multiple Sclerosis group
Rewards
-
Contributor
-
Messenger
-
Explorer
it's almost fall :) I'm in the midwest and it's starting to cool.
Laproal
Good advisor
Laproal
Last activity on 04/15/2026 at 3:54 PM
Joined in 2018
49 comments posted | 43 in the Living with Multiple Sclerosis group
1 of their responses was helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
@5Fraweemoun right! Happy first day of fall everyone, here is to cooler weather!
Give your opinion
Articles to discover...
10/22/2026 | Testimonial
Ehlers-Danlos syndrome and cervical instability: “I’m confined to bed 24 hours a day”
Subscribe
You wish to be notified of new comments
You have been subscribed
Koameybloagoash
Koameybloagoash
Last activity on 03/06/2026 at 5:38 PM
Joined in 2019
4 comments posted | 4 in the Living with Multiple Sclerosis group
Rewards
Explorer
Newsfeeder
But now having MS I hate summer and also being in this wheelchair I really hate summer and not being able too do so much that other people can do with out worries of being so hot you can barely move