Logo Carenity
Logo Carenity
Join now! Log in
flag us
flag fr flag en flag es flag de flag it
Home

Forums

Latest discussions
General discussions
See all - Forum index from A to Z

Medications

Medications fact sheet
See all - Medication index from A to Z

Surveys

Ongoing surveys
The results of the surveys

Magazine

Our featured pieces
News
Testimonials
Nutrition
Advice
Procedures & paperwork

Conditions

Fact sheets
See all - Disease index from A to Z

About

About us
Why share your data?
The Carenity team
The ambassadors
Partner associations
Contributors
The Science and Ethics Committee
Our scientific publications
Our commitments
Certifications and awards
Carenity in the news
Editorial policy
Code of conduct and privacy policy
Legal notice
Terms of use
Cookie management
Contact
Carenity for professionals

Join now! Log in
  • Forums

    • Latest discussions
    • General discussions
    • See all - Forum index from A to Z
  • Medications

    • Medications fact sheet
    • See all - Medication index from A to Z
  • Surveys

    • Ongoing surveys
    • The results of the surveys
  • Magazine

    • Our featured pieces
    • News
    • Testimonials
    • Nutrition
    • Advice
    • Procedures & paperwork
  • Conditions

    • Fact sheets
    • See all - Disease index from A to Z
  • Home
  • Forums
  • General forums
  • Living with multiple myeloma
  • What are some online sources you use to learn about Multiple Myeloma?
 Back
Living with multiple myeloma

What are some online sources you use to learn about Multiple Myeloma?

  •  23 views
  •  0 support
  •  3 comments

avatar Jessie1564

Jessie1564

12/18/2023 at 7:11 AM

avatar Jessie1564

Jessie1564

Last activity on 09/01/2025 at 6:09 PM

Joined in 2023


6 comments posted | 5 in the Living with multiple myeloma group


Rewards

  • Messenger

  • Explorer


 View profileView  Add a friendAdd  Write

Hi

When my husband was diagnosed I was told not to google blindly about MM. It will scare you and is not always correct. I wanted to share a few sites that I found in my research that I found presented information in a decent way-

International Myeloma Foundation handbook -https://s3.us-west-1.wasabisys.com/imf-d8-prod/resource/patient-handbook.pdf

Presentation on the most current treatments and side effects (Revlimid, Velcade, Dexamethasone, and Darzalex) https://www.youtube.com/watch?app=desktop&v=w8qPJtRWETs

Detailed patient & caregiver guide on autologous stem cell transplants (this hospital seems credible) https://www.mskcc.org/cancer-care/patient-education/autologous-stem-cell-transplant-guide-patients-caregivers

What other sites do you use/trust to learn?

Follow

Other groups...

Carenity News
Feedback for Carenity
Fun and games
General Topics
Good to know
Health and Medical News
How to use Carenity
Let's talk about COVID-19
Life beyond illness
The Holiday Season
Youth patients with chronic conditions

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

All comments

avatar LizziB

LizziB

12/28/2023 at 9:31 PM

Good advisor

avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 14 in the Living with multiple myeloma group

24 of their responses were helpful to members


Rewards

  • Good Advisor

  • Contributor

  • Messenger

  • Explorer

  • Friend


 View profileView  Add a friendAdd  Write

Hi @Jessie1564

How are you?

Thank you for sharing these resources!

Do you have any MM resources that helped you understand the disease that you'd like to share?

@Findoka @ualman @LadyCoconut @Cerdaj @kimcallaway12 @PSesker @Phil.yandel @lauralippmann @JWPOPE50 @1sunmk @glennadunn1226 @Harstev @MaHeck @shellmark @Counselor71 @Lods10.10.2023 @Chloegirl @Patsull50 @Samsthetwin @Sleelee68 @EMHart @Paso906 @totopeg @RJOHNIGARN1 @Mikepeele @LadyDJP @Ahallphd2017 @Csuefra @Theobaldsherry @mrscarone @thegurns

Take care,

Lizzi from the Carenity team

See the signature

LizziB


What are some online sources you use to learn about Multiple Myeloma? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/what-are-some-online-sources-you-use-to-learn-5656 2023-12-28 21:31:38

Close all 

See the responses 

avatar ualman

ualman

12/29/2023 at 1:46 AM

avatar ualman

ualman

Last activity on 12/02/2024 at 1:15 AM

Joined in 2023


1 comment posted | 1 in the Living with multiple myeloma group

1 of their responses was helpful to members


Rewards

  • Explorer


 View profileView  Add a friendAdd  Write

@LizziB Hi. My main connection is "My Myeloma Team".


What are some online sources you use to learn about Multiple Myeloma? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/what-are-some-online-sources-you-use-to-learn-5656 2023-12-29 01:46:07

avatar thegurns

thegurns

12/29/2023 at 12:14 PM

avatar thegurns

thegurns

Last activity on 06/29/2025 at 3:29 PM

Joined in 2023


8 comments posted | 4 in the Living with multiple myeloma group

1 of their responses was helpful to members


Rewards

  • Messenger

  • Explorer

  • Friend

  • Newsfeeder


 View profileView  Add a friendAdd  Write

@LizziB Yes,

Amazon.com: Living Well with Cancer eBook : GUERNSEY, KEITH: Kindle Store

Please contact me anytime that I can help you.

I am a Myeloma Coach.

Stay Strong, Keith

3X cancer survivor

See the signature

Keith Douglas Guernsey


What are some online sources you use to learn about Multiple Myeloma? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/what-are-some-online-sources-you-use-to-learn-5656 2023-12-29 12:14:33

Hide the responses 

Give your opinion

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

Become a Carenity Ambassador – Help our community thrive!

Articles to discover...

Caregiver burnout: When caring for someone else leaves no room for yourself

09/07/2026 | Advice

Caregiver burnout: When caring for someone else leaves no room for yourself

Why does physical activity have a positive effect on mental health?

08/29/2026 | News

Why does physical activity have a positive effect on mental health?

Weight gain without eating more: What's really going on?

08/22/2026 | News

Weight gain without eating more: What's really going on?

Can emotions make you physically ill?

08/15/2026 | News

Can emotions make you physically ill?

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

02/20/2019 | Advice

Cigarettes VS e-cigarettes: an update on the consumption and pitfalls to avoid

Telemedicine: Remote examinations and operations are here!

03/11/2019 | News

Telemedicine: Remote examinations and operations are here!

Chronic fatigue: patients' experiences and solutions

04/15/2019 | Advice

Chronic fatigue: patients' experiences and solutions

Love life in the face of illness: how to cope?

02/14/2019 | Advice

Love life in the face of illness: how to cope?

icon cross

Does this topic interest you?

Join the 500 000 patients registered on our platform, get information on your condition or on that of your family member, and discuss it with the community

Join now! Join now! Join now! Join now! Join now!

It’s free and confidential

Subscribe

You wish to be notified of new comments

 

You have been subscribed

Join now! Log in

About

  • About us
  • Why share your data?
  • The Carenity team
  • The ambassadors
  • Partner associations
  • Contributors
  • The Science and Ethics Committee
  • Our scientific publications
  • Our commitments
  • Certifications and awards
  • Carenity in the news
  • Editorial policy
  • Code of conduct
  • Legal notice
  • Terms of use
  • Cookie management
  • Contact
  • Carenity for professionals

Quick access

  • Health magazine
  • Search a forum
  • Learn about a condition
  • See medication reviews
  • List of forums (A-Z)
  • List of condition info sheets (A-Z)
  • List of medication fact sheets (A-Z)
  • Language flag fr flag en flag de flag es flag it

The www.carenity.us website does not constitute or replace professional medical advice.