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What are some online sources you use to learn about Multiple Myeloma?
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Woplee284
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Woplee284
Last activity on 04/21/2024 at 8:17 PM
Joined in 2022
603 comments posted | 14 in the Living with multiple myeloma group
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Hi @Choastaplalayck2847
How are you?
Thank you for sharing these resources!
Do you have any MM resources that helped you understand the disease that you'd like to share?
@Voleedrer3486 @Prayvoong643 @790Pleydisteyl @Nadruplay642 @Preecroukong07 @Couloacleplosh9286 @Hilekaysh099 @Pichaivadrool3980 @Stotroaboobleyl778 @Chamomile5522 @93Bleytrouteedil @Woostayweys12 @Rookuglung655 @Glayshadoshin0174 @Wuwoafleableal39 @Wureepluck4 @Traibloumesh193 @021Dropreeclays @905Puprugoul @Shayhoceen6 @Foujaytrea0 @Bloucroun40 @0Plovos @Jopeyl85 @Freyplaytoot56 @Croucroacrays578 @Tucreesh19 @Pruploos4 @353Yeecaydor @Fleeflageytish6274 @Godraywail2
Take care,
Lizzi from the Carenity team
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LizziB
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Prayvoong643
Prayvoong643
Last activity on 12/02/2024 at 1:15 AM
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@Woplee284 Hi. My main connection is "My Myeloma Team".
Godraywail2
Godraywail2
Last activity on 06/29/2025 at 3:29 PM
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@Woplee284 Yes,
Amazon.com: Living Well with Cancer eBook : GUERNSEY, KEITH: Kindle Store
Please contact me anytime that I can help you.
I am a Myeloma Coach.
Stay Strong, Keith
3X cancer survivor
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Keith Douglas Guernsey
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Choastaplalayck2847
Choastaplalayck2847
Last activity on 09/01/2025 at 6:09 PM
Joined in 2023
6 comments posted | 5 in the Living with multiple myeloma group
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Hi
When my husband was diagnosed I was told not to google blindly about MM. It will scare you and is not always correct. I wanted to share a few sites that I found in my research that I found presented information in a decent way-
International Myeloma Foundation handbook -https://s3.us-west-1.wasabisys.com/imf-d8-prod/resource/patient-handbook.pdf
Presentation on the most current treatments and side effects (Revlimid, Velcade, Dexamethasone, and Darzalex) https://www.youtube.com/watch?app=desktop&v=w8qPJtRWETs
Detailed patient & caregiver guide on autologous stem cell transplants (this hospital seems credible) https://www.mskcc.org/cancer-care/patient-education/autologous-stem-cell-transplant-guide-patients-caregivers
What other sites do you use/trust to learn?