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  • What are the needs in terms of digital solutions and information for people with metastatic breast cancer?
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Living with metastatic breast cancer

What are the needs in terms of digital solutions and information for people with metastatic breast cancer?

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avatar LizziB

LizziB

08/19/2022 at 4:42 PM

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avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 43 in the Living with metastatic breast cancer group

24 of their responses were helpful to members


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Hello everyone, 

I hope you are doing well 😊

Throughout their care pathway, patients and caregivers may need information and digital solutions to better cope with the metastatic breast cancer consequences. So, let's talk about it together! 

  • What types of digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) did you (or the patient) receive for your (or the patient’s) metastatic breast cancer? 
  • Where do you (or the patient) look at when you (or the patient) seek for new digital solutions (online support groups, mobile apps dedicated to metastatic breast cancer, online patient support programs, etc.) for metastatic breast cancer? 
  • Which information would you (or the patient) need on metastatic breast cancer? 

 Do not hesitate to share your experience and advice, we are here to exchange and support each other! 

Take care, 

Lizzi from the Carenity Team 

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avatar LizziB

LizziB

11/30/2022 at 2:23 PM

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avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 43 in the Living with metastatic breast cancer group

24 of their responses were helpful to members


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Hi everyone,

How are you today?

To make sure you are able to find this discussion, I will tag you. Don't hesitate to share your thoughts and experiences about digital solutions.

@Janetmaday @jeangilmorej @patches678 @Millinda48

What type of solutions do you use? Where do you look for these solutions? What information are you looking for?

Let's share!

Take care,

Lizzi

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LizziB


What are the needs in terms of digital solutions and information for people with metastatic breast cancer? https://www.carenity.us/forum/other-discussions/living-with-metastatic-breast-cancer/what-are-the-needs-in-terms-of-digital-solutions-and-information-for-people-with-metastatic-breast-cancer-4739 2022-11-30 14:23:30

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avatar JanieGurl

JanieGurl

12/05/2022 at 12:10 AM

avatar JanieGurl

JanieGurl

Last activity on 09/01/2025 at 6:10 PM

Joined in 2022


10 comments posted | 9 in the Living with metastatic breast cancer group


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Hi @LizziB

I don't really like digital groups, I am more of an in-person type. I like the energy from others. I obviously used google a bunch for research. I also got an app, My Cancer Coach, to track appointments, medicine, etc. It was helpful because it suggested questions to ask my doctor and some were ones I would not have thought of on my own.


What are the needs in terms of digital solutions and information for people with metastatic breast cancer? https://www.carenity.us/forum/other-discussions/living-with-metastatic-breast-cancer/what-are-the-needs-in-terms-of-digital-solutions-and-information-for-people-with-metastatic-breast-cancer-4739 2022-12-05 00:10:59

avatar LizziB

LizziB

01/13/2023 at 12:25 PM

Good advisor

avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 43 in the Living with metastatic breast cancer group

24 of their responses were helpful to members


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Hi @JanieGurl

Thanks for sharing. We had a few more members pass the screener. I will tag them here.

@itaz86 @savvypatient4patients @Janetmaday @jeangilmorej @patches678 @Millinda48

Please share your experiences and responses to the initial question here with the group by clicking the green "reply" button.

Thanks everyone,

Lizzi

See the signature

LizziB


What are the needs in terms of digital solutions and information for people with metastatic breast cancer? https://www.carenity.us/forum/other-discussions/living-with-metastatic-breast-cancer/what-are-the-needs-in-terms-of-digital-solutions-and-information-for-people-with-metastatic-breast-cancer-4739 2023-01-13 12:25:05

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