"You look so good, how can you be so sick?"

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mickey

01/09/2019 at 2:41 AM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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129 comments posted | 11 in the Living with Infection - Inflammation - Immune system diseases group

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HELLO, IF YOU HAVE HEARD THAT SAYING ABOVE BEFORE, YOU NEED TO KEEP IN CONTACT WITH ME. MY NAME IS MICHELE MCNEILL.

I DID WRITE A SMALL PARAGRAPH ON MY LIFE WITH LUPUS. I HAVE BEEN WORKING ON A BOOK. THE BOOK IS ABOUT MY LIFE WITH SYSTEMIC LUPUS. PLUS DX WITH MS WITHIN THE LAST 2 YRS. I HOPE I CAN HELP SOMEONE ENOUGH SO, THEY CAN HELP THEMSELVES. PLEASE KNOW, MY EMAIL ADDRESS: mickeyitaly3@aol.com

LETS PULL TOGETHER AND FIND A CURE!!!

ALWAYS MICKEY

AKA MICHELE MCNEILL

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mickey

01/09/2019 at 2:43 AM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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THANKS CARENITY, FOR GIVING ME AN OPPORTUNITY TO HELP THOSE WHO HAVE THIS TERRIBLE DISEASE. WHEN THEY LOOK SO GOOD AND PEOPLE SAY "HOW CAN THEY BE SO SICK???" THANK YOU FOR THE OPPORTUNITY TO HELP THOSE WHO ARE TRYING TO LIVE A NEAR NORMAL LIFE.

ALWAYS MICKEY AKA MICHELE MCNEILL

"You look so good, how can you be so sick?" https://www.carenity.us/forum/other-discussions/living-with-infection-inflammation-immune-syst/you-look-so-good-how-can-you-be-so-sick-676 2019-01-09 02:43:26

lupus38

01/15/2019 at 5:59 PM

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lupus38

Last activity on 01/10/2023 at 10:56 AM

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Wow @mickey‍ a book would be wonderful! When were you diagnosed with lupus? I am interested in knowing, what do you find more difficult, MS or Lupus... as I fear they are such different diseases but attack our bodies in different ways, it seems to be unbearable. I admire your strength and courage!

Lee__R

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01/15/2019 at 6:03 PM

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Lee__R

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@mickey‍ Thank you for being an active member on Carenity and I think I speak for everyone... we all admire your strength and courage!

Lee__R

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01/15/2019 at 6:07 PM

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Lee__R

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How does it make you feel @mickey‍ when people make such comments "you look so good, how can you be sick?" or "you do not look sick," etc.? Do those comments bother you?

mickey

Edited on 01/15/2019 at 6:14 PM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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129 comments posted | 11 in the Living with Infection - Inflammation - Immune system diseases group

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HELLO LEE,

THANKS FOR HELPING ME, IN HELPING THOSE THAT HAVE GIVEN UP ON LIFE. I HAVE RECEIVED OVER 80 EMAILS IN THE LAST WEEK OR 2. THANKS FOR HELPING ME TO POST SOME ISSUES THAT WE FACE EVERY DAY!! THIS IS A GREAT THING YOU HAVE DONE!!!!! I CAN NOT SAY ENOUGH OF GOOD THINGS ABOUT YOU AND YOUR EFFORTS. PLEASE DO CHECK MY WRITING BECAUSE I AM IN PAIN AND SOMETIMES I WANT TO SAY SOMETHING BUT, LOSE MY TRAIN OF THOUGHT. I HAVE STUDIED LAW BUT, HAVE TO STOP. THE PAIN WAS OVER BEARING AND I DID AS MUCH AS POSSIBLE. I EARNED A MASTERS DEGREE. ONE OF 2 BS. MAKES A MASTERS.

I HAVE ONE IN SOCIAL SCIENCE AND THE OTHER IN PRE-LAW/LEGAL STUDIES. PLEASE REMEMBER ME BECAUSE I WOULD LIKE TO GIVE YOU MY PHONE NUMBER.. IS THEIR A WAY NOT TO POST MY PHONE NUMBER. THANKS AGAIN FOR YOUR STRENGTH. YOU HAVE BEEN MY INSPIRATION!!!

RESPECTFULLY

MICHELE AKA MICKEY

mickey

01/15/2019 at 6:16 PM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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DEAR LEE,

PLEASE CONTACT ME AT MY EMAIL ADDRESS.

THANKS

MICHELE AKA MICKEY

mickey

01/20/2019 at 7:48 AM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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HELLO, LUPUS38

I AM GLAD TO MEET YOU!! I FOUND THAT ALL THE CHAT ROOMS, THAT THIS IS THE BEST!! NO ONE JUDGES ANYONE ELSE...REMEMBER THAT!!! FEEL FREE TO TALK BECAUSE WE ARE PEOPLE WITH HEART.. WE ARE ALL SICK AND SUFFERING FROM ONE THING OR ANOTHER. DO NOT FEEL, YOU ARE ALONE!!! YOU ARE NOT ALONE!! I LOST MY MOTHER, AND THAT IS JUST CATCHING UP WITH ME. NOW, I KNOW SHE IS REALLY GONE..I HAVE BEEN IN DENIAL. PLEASE FEEL FREE TO EMAIL ME. AT TIMES--I JUST CHECK MY MAIL AND GO BACK TO BED. I AM NOT VERY CLOSE TO A REMISSION. SO, KEEP ME IN YOUR PRAYERS. mickeyitaly3@aol.com

ALWAYS MICKEY

mickey

01/22/2019 at 5:13 PM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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YES, I STILL HAVE PAIN!!

HELLO,

I HAVE RECEIVED MANY EMAILS FROM EVERYONE THAT SEEMS TO READ MY POSTS. PLEASE KNOW, BECAUSE I HAVE A STOMACK PUMP, IT DOES NOT MEAN YOU NEED ONE!!! I HAVE 2 CHRONIC PROBLEMS. MS AND SYSTEMIC LUPUS. I HAVE GONE TO UCLA AND OTHER DOCTORS. I DO NOT LIKE THE DOCTORS THAT SUPPOSE TO SPECIALIZE WITH SLE.

I GO TO PAIN MANAGEMENT AND MY PRIMARY DOCTOR. THAT IS GREAT FOR ME. I DO NOT HAVE THE ENERGY TO SHOP DOCTORS. I DO NOT HAVE TO (THANK GOD!!). MANY YEARS OF SEARCHING, UNTIL I REALIZED I HAVE ISSUES WITH PAIN AND NEED RELIEF. THAT IS WHY I HAVE THE PAIN PUMP. I WAS GOING 911 TOO OFTEN AND HATED IT. THEY COULD NOT TELL ME IF THE PAIN WAS FROM LUPUS OR IF I REALLY DID HAVE MS. THAT DROVE ME NUTS...NOW, I AM OUT OF REMISSION.. I AM HAVING COMPUTER PROBLEMS I WILL ATTEMPT TO GET BACK!!

MICKEY

mickey

Edited on 01/22/2019 at 5:23 PM

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mickey

Last activity on 05/22/2025 at 5:31 AM

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129 comments posted | 11 in the Living with Infection - Inflammation - Immune system diseases group

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HELLO AGAIN,

I JUST WANT TO SAY, I AM LEARNING MORE EVERY DAY AND I HOPE I CAN FIND SOMEONE TO ASSIST ME IN MY BOOK. IF ANYONE KNOWS OF A PERSON WHO WILL COMMIT TO HELPING ME, GREAT!! I CAN NOT FINISH THE LAST FEW CHAPTERS BECAUSE I AM SUFFERING. I WANT TO THANK EVERYONE FOR THIS SPECIAL OPPORTUNITY, WE HAVE TO CONTACT EACH OTHER... I HOPE YOU APPRECIATE THIS TIME AND SPACE WE HAVE TO SHARE EACH OTHER's LIFE. FORGIVE, ALL THE ERRORS IN MY POSTS. I AM TRYING TO CONCENTRATE MANY TIMES AND I CAN NOT ALWAYS PROOFREAD THE POSTS. I HAVE RECEIVED OVER 100 POSTS IN 2 WEEKS. WE DO NEED TO KEEP IN CONTACT WITH EACH OTHER. THIS IS THE ONLY WAY AND THIS OPPORTUNITY//// IS SO VERY SPECIAL!!!! TELL CARENITY THANKS AS ALWAYS!!

ALWAYS MICKEY PS: I AM TOO SICK TO SIT AT THE COMPUTER. IF YOU EMAIL ME, I WILL GET BACK TO YOU. mickeyitaly3@aol.com

"You look so good, how can you be so sick?"

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