YOU LOOK SO GOOD; HOW CAN YOU BE SO SICK!!!

@Somya.P HELLO, SO MANY QUESTIONS!! I AM HERE TRYING TO ANSWER THOSE QUESTIONS!! IF THERE IS A WAY THAT I CAN ANSWER SOME NOW!! I CAN START AND IF I LEAVE ANYTHING OUT, EMAIL ME WITH THE QUESTIONS I LEFT OUT, PLEASE!!! WHEN I WAS DX WITH SLE, AKA LUPUS, I PROMISED MYSELF THAT I WOULD MAKE A DIFFERENCE. I STARTED A SUPPORT GROUP 1982. I HAVE BEEN ATTEMPTING TO WRITE A BOOK BUT, I NEED HELP!! I AM HALFWAY FINISHED. LUPUS DISEASE, FROM A PATIENT'S POINT OF VIEW!!! THE PAIN HAS TO BE MANAGED BECAUSE YOU WILL GET DEPRESSED AND SOME PEOPLE ATTEMPT SUITISE (mis-spelled) Most people depend on a support system!! (Someone who shares their life with--family, friends or others that have Lupus) I wish we can talk or send a private message with those questions. I need to type it out and copy the questions. Many of those questions, I have had many experiences. I met someone in Congress. This person, I met in person and he could care less about the issue of people getting on Social Security!! (Congress person denied my request to help a child to get Social Security)

Over a short period of time--I receive a phone call, and they told me that the Congress person now has twin nieces newly dx with Lupus Disease!!! The doors opened for my child in my support group!!! He now received Social Security!!! Finally, it was a battle!!! What a way to have someone care about Lupus Disease!! They had to experience it themselves!!! Please feel free to call me on the phone-I sure you will find our conversation worth every minute. I am very sick but, always worth attempt to help someone with Lupus, especially the children!! Call Me 909483-7386 Always, Trying to help someone who wants to help themselves!! Michele aka Mickey

@Somya.P People will never know how much a person with Lupus lives with or cannot relate at all!! When I finish my book--I went to send you a copy but, remember all proceeds for this book will pay for publication and RESEARCH!! I do not have the money for publication but, I am still looking!! I also wanted to contact Martin Scorsi, or Franes Ford Coppocal--mis-spelled and too weak to stop to correct the spelling (sorry) I was approached by someone that wanted to know my story. I am an Italian America who is very sick!!! My father would use the belt on me because I could not get out of BED!!! I was abused, more than one time of the BELT. My parents thought I was LAZY!! When I was a child, my life was like no one else!!! My experiences, I hope will help someone who wants to help themselves. The book, (I hope) will educate people about Living with Lupus!!! My father died never knowing I had Lupus, just lazy (he was 51 died of Cancer) My mother, lived with me and died in her 80's!! She eventually moved in with me and a few weeks before she died she said, "CAN YOU EVER FORGIVE US!!" I said to my mother, I forgave you a long time ago!!! She died in peace. Well, I hope you contact me by phone and I will be able to answer those questions easier. I am 73 and still ticking.

Love and Blessings Michele aka Mickye