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  • Do you suffer from severe, chronic intractable pain (IP)?
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Living with chronic pain

Do you suffer from severe, chronic intractable pain (IP)?

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avatar LizziB

LizziB

11/06/2023 at 4:05 PM

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avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

Joined in 2022


603 comments posted | 23 in the Living with chronic pain group

24 of their responses were helpful to members


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Hello everyone,

How are you doing today?

Did you know that epidemiologic surveys indicate that over 40% of the adult population has chronic, recurrent pain, mainly due to musculo-skeletal degenerative conditions, but within this group, there is a sub-group of individuals who suffer constant, excruciating, unrelenting pain. This patient subgroup are commonly referred to as intractable pain (IP) patients.

This pain has been described as "a pain that is excruciating, constant, incurable, and of such severity that it dominates virtually every conscious moment, produces mental and physical debilitation "

What you heard of intractable pain? Do you or someone you know live with chronic intractable pain (IP)? What have their experiences been like? How do they cope?

I'll tag a few members to get the conversation started.

@joedpain @Mlangdon @Mollie1! @Mysharona @Anne1972 @Bluegirl53 @D1969$$ @VictoriaRiegel @Tracy54 @Arhembree @420FlowerChild @Susies @Wendymitch66 @sheardefiance @Laj1963 @Phylholly @Sschauer859 @Kbaase @Buttons#1 @Dinky1 @Stillahippy @Chelle73 @Chatteras @Jeanniegollihue @LUCY2010 @Jennstovall913 @nstacy @Paven95 @Sharon

Take care,

Lizzi from the Carenity team

To read more about IP, please see the source link below:

source: https://www.practicalpainmanagement.com/resources/intractable-pain

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avatar Karenkiwi

Karenkiwi

11/10/2023 at 12:03 AM

avatar Karenkiwi

Karenkiwi

Last activity on 08/26/2023 at 2:25 PM

Joined in 2023


2 comments posted | 2 in the Living with chronic pain group

1 of their responses was helpful to members


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Yes I am in excruciating pain everyday All day and can't find a doctor around here willing to take New patients please help me with this matter asap thanks 🙏 God bless you 😇🙏



Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:03:17

avatar sando0826

sando0826

11/10/2023 at 12:20 AM

avatar sando0826

sando0826

Last activity on 02/15/2026 at 9:44 PM

Joined in 2021


2 comments posted | 1 in the Living with chronic pain group

2 of their responses were helpful to members


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I have MS and I have nerve pain that never goes away unless I take really strong drugs that make me unable to do much. It affects my ability to concentrate or enjoy my life. I honestly don’t know what to do!!!


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:20:09

avatar Tstokes

Tstokes

11/10/2023 at 12:20 AM

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avatar Tstokes

Tstokes

Last activity on 10/15/2024 at 4:53 PM

Joined in 2023


25 comments posted | 8 in the Living with chronic pain group

10 of their responses were helpful to members


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I've never heard of this however I would say I fall into this category. I had to have 22 surgeries on my back as a result of radiation to my sacral bone and spine. When people ask me my pain level on a scale of 1-10 I just laugh because it's always at av6bor higher. There are some days better than others but nothing lower than a 5. On the really bad days I get what I call "SHOOTERS". THEY FEEL LIKE IM GETTING 220 VOLTS OF ELECTRICITY DOWN MY LEGS. THEY GIVE ME A JOLT EVERY 3 TO 5 MINUTES AND DONT SUBSIDE UNTIL I TAKE A HEAVY DOSE OF VALIUM. TO KNOCK ME OUT. IN EXTREME CASES THEY'VE LASTED FOR 2 TO 3 DAYS. I've learned to live with this but every day is a challenge to get up and get moving.

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Thomas F Stokes


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-10 00:20:18

avatar FrancescaZoe

FrancescaZoe

11/13/2023 at 11:58 PM

avatar FrancescaZoe

FrancescaZoe

Last activity on 08/06/2024 at 12:43 PM

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2 comments posted | 2 in the Living with chronic pain group


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I would like to discuss positive, fruitful, and successful ways to live with bipolar.


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-13 23:58:22

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avatar LizziB

LizziB

11/14/2023 at 2:02 AM

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avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 23 in the Living with chronic pain group

24 of their responses were helpful to members


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@FrancescaZoeFeel free to check out the "Living with bipolar" forum here: https://member.carenity.us/forum/bipolar-disorder/living-with-bipolar-disorder-164

You can read some interview with other bipolar members here: https://member.carenity.us/condition-information/magazine/testimonials?m%5Bname%5D=Bipolar+disorder&m%5Bmid%5D=1003

Take care,

Lizzi from the Carenity team

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LizziB


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-11-14 02:02:26

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avatar PokerFaceJess

PokerFaceJess

12/15/2023 at 1:08 AM

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avatar PokerFaceJess

PokerFaceJess

Last activity on 04/12/2026 at 12:00 AM

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28 comments posted | 20 in the Living with chronic pain group

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I have intractable chronic pain. I'm getting close to what I consider the "end" of my willingness to ensure UNNECESSARY pain.


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-12-15 01:08:15

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avatar joedpain

joedpain

12/25/2023 at 8:54 PM

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avatar joedpain

joedpain

Last activity on 09/02/2026 at 4:54 PM

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15 comments posted | 9 in the Living with chronic pain group

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@PokerFaceJess Sorry for what you are going through. I also have intractable pain. Pain management has tried different medications with no relief. I feel that my pain Dr. can but will not prescribe something stronger to help relieve the pain. I hope you will find a Dr who is willing to help you.

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Joe Dominguez


Do you suffer from severe, chronic intractable pain (IP)? https://www.carenity.us/forum/other-discussions/living-with-chronic-pain/do-you-suffer-from-severe-chronic-intractable-5568 2023-12-25 20:54:30

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