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"But you don't look sick"... what is your experience living with chronic pain?
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Jamilynn59
Jamilynn59
Last activity on 11/18/2023 at 12:37 AM
Joined in 2023
1 comment posted | 1 in the Living with chronic pain group
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Yes of course people do say that it makes me really sad sometimes that I have to explain my self to people that I have a chronic pain disorder on the inside or like I have a handicap parking thing and people say I'm abusing it but I'm not cause it's so difficult to walk just a short distance if those people only knew my struggles
AS1218
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AS1218
Last activity on 02/05/2024 at 1:39 AM
Joined in 2018
56 comments posted | 8 in the Living with chronic pain group
3 of their responses were helpful to members
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I even have trouble with doctors not understanding!
Becholz66
Becholz66
Last activity on 08/08/2025 at 5:30 PM
Joined in 2023
7 comments posted | 5 in the Living with chronic pain group
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I have no neck because of my KFS. I don't mind being asked. It's the stares that bother me. My doctors are my problem. Typically I go in, tell them I have KFS, they say of course I know that, then ask me how to spell it, look it up on their phone IN FRONT OF ME! Then tell me fusions don't cause pain! And act like they know more about it than me! So I still feel unseen.
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Rebecca Holzapfel
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LizziB
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LizziB
Last activity on 04/21/2024 at 8:17 PM
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603 comments posted | 23 in the Living with chronic pain group
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Hello everyone,
How are you doing today?
How many times do you hear "But you don't look sick"? Many struggle to comprehend that people may suffer from invisible illnesses. At Carenity, many people are live with conditions that have "invisible" symptoms.
What about you? Have you experienced these types of comments? Do people understand your situation? Do you tell your coworkers, friends? How do you make it through the day living in pain that people don't understand?
I'll tag a few members to see if they would like to share an experience.
@Lmtoliver @Stevenkinnamon @essie46 @KIMLOVESHERANIMALS @Jamilynn59 @nanaskids61 @Ritajo @HotStuff74 @GraceH-M @Littlball0fire @annaofthewaves @Justin76 @Mscott25 @ColoFox @Sli0807 @ginamc @KellyIdjit @bclryker1960 @Ariffe @Edieb3 @Angie-147 @*SnoopGirl* @itzjustme @CapriIslandGirl @Lbd1956 @Burningpain10 @Mac3451 @ShirleyOakes @Danalynn @Char4237
Take care,
Lizzi from the Carenity team