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  • Living with ankylosing spondylitis
  • When were you diagnosed with AS? What were your symptoms?
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Living with ankylosing spondylitis

When were you diagnosed with AS? What were your symptoms?

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avatar Lee__R

Lee__R

Community manager
11/07/2018 at 11:55 PM

Good advisor

avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,336 comments posted | 26 in the Living with ankylosing spondylitis group

2 of their responses were helpful to members


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The common early symptoms of ankylosing spondylitis include pain that exists for more than three months and back pain and stiffness that worsens with immobility.

However, the age of onset and warning signs / initial symptoms of ankylosing spondylitis experienced can vary from person to person. 

What was your age when you experienced the onset of Ankylosin Spondylitis? 

What were the warning signs / early symptoms that made you seek out medical advice?

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avatar Lee__R

Lee__R

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11/28/2018 at 5:39 AM

Good advisor

avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 26 in the Living with ankylosing spondylitis group

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Hello members, does anyone have any input? @Athijssen‍ @nomasAS‍ @fraskb‍ @rwilsonjr67‍ @Anjelkiss‍ @DuchyCT‍ @Edelweiss70‍ @Mbaulch‍ 


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-11-28 05:39:58
avatar exit

Unregistered member

11/28/2018 at 2:49 PM

prolonged back and hip pain, multiple doctors and PT, Xrays etc   until finally one doctor suggesred AS and started looking for that specificly


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-11-28 14:49:09

avatar Mbaulch

Mbaulch

12/04/2018 at 1:22 AM

avatar Mbaulch

Mbaulch

Last activity on 09/25/2021 at 10:11 PM

Joined in 2018


7 comments posted | 7 in the Living with ankylosing spondylitis group


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i developed severe sacroilliac  and left sciatic nerve pain with severe weakness and shortness of breath.  After being told to start walking I told my doctor I had a nephew who had had AS,  He actually committed suicide at age 30.  I was tested for the gene and had an MRI that showed that my bones had already changed.

 

 


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-12-04 01:22:18

avatar JTom4cats

JTom4cats

01/28/2019 at 6:10 PM

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avatar JTom4cats

JTom4cats

Last activity on 07/23/2025 at 11:22 PM

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20 comments posted | 17 in the Living with ankylosing spondylitis group

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@Lee__R 

I experienced severe back pain in my mid-20's.  Worked thru that with Tylenol.  In my low 30's I had sciatic pain to the point I was bed-ridden for days at a time.  After seeing several orthopedic doctors I finally went to a Osteopath who did some investigating and determined I has AS.  Been seeing a Rheumatologist for many years and have been on Enbrel for almost 20 years 

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Tom W - Food and Coffee


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2019-01-28 18:10:56

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