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What was the first thought that crossed your mind when you were diagnosed?
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Razar.M
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Razar.M
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Last activity on 11/09/2026 at 6:13 PM
Joined in 2026
102 comments posted | 25 in the Good to know group
4 of their responses were helpful to members
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I’d really love to hear your stories here. What was the very first thought that crossed your mind when you received your diagnosis?
Looking back now, what would you tell yourself on that day? 💙
Reeveyplomang
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Reeveyplomang
Last activity on 11/09/2026 at 3:02 PM
Joined in 2026
Patient, Psoriatic arthritis since 2026
Other conditions: Breast cancer, Diabetes (Type 2) + 6 other conditions
33 comments posted | 14 in the Good to know group
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The uncertainty is probably the hardest part of getting a diagnosis. There are so many questions, and you want answers right away. My advice would be not to overwhelm yourself trying to figure everything out at once. Take time to understand the condition, ask questions at appointments, and focus on what you can manage today. You don't have to have everything figured out from day one.
Craploushaystayr29
Craploushaystayr29
Last activity on 11/09/2026 at 5:14 PM
Joined in 2026
Patient, Immune thrombocytopenic purpura since 2026
Other conditions: Breast cancer, Prostate cancer + 1 other condition
36 comments posted | 12 in the Good to know group
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That first day can bring so many questions, and it's hard not to worry about what comes next. 💗 The advice I'd give anyone newly diagnosed is to take things one step at a time. You don't need to understand everything right away, and it's okay to ask for help. Even writing down questions before doctor's appointments can make things a little easier.
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Razar.M
Community managerGood advisor
Razar.M
Community manager
Last activity on 11/09/2026 at 6:13 PM
Joined in 2026
102 comments posted | 25 in the Good to know group
4 of their responses were helpful to members
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Hi everyone 💙
Receiving a chronic illness diagnosis can be one of those moments that stays with you.
For some people, the first feeling is fear.
For others, finally having an answer after months or years of symptoms can bring relief.
And sometimes the only thought is: “What happens next?”
💬 We'd love to hear your story:
What was the very first thought that went through your mind when you received your diagnosis?
And knowing what you know today, what would you tell yourself on that first day?
Your experience could give someone who was recently diagnosed a little hope or reassurance. 💙
With care,
Razar from the Carenity team 💖