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  • “I wish people knew this about living with a chronic illness…”
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“I wish people knew this about living with a chronic illness…”

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avatar Somya.P

Somya.P

Community manager
06/11/2026 at 6:21 PM

Good advisor

avatar Somya.P

Somya.P

Community manager

Last activity on 07/20/2026 at 5:09 PM

Joined in 2023


1,012 comments posted | 331 in the Good to know group

32 of their responses were helpful to members


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Hello everyone 🌿

I hope you’re doing as well as possible today.

Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.

Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.

💬 Let’s open the conversation:

  • What is one thing you wish people understood about living with a chronic illness?
  • Is there a common phrase, belief, or reaction that feels particularly frustrating or hurtful?
  • If you could say one sentence to someone who has never lived with a chronic condition, what would it be?

Your words may resonate with someone who feels unseen or misunderstood and help build empathy where it’s needed most. 💙

Looking forward to reading your thoughts,

Somya, from the Carenity team 🌼

@CPinVA @sixfthrlyblonde @Jolie60 @Germ63 @Brendan @Gigicoughlin @jford76 @AngelaJewell @smccann @nonono @mikeand75 @Sagebrushed1 @gommer1 @Rainbowq2 @Sissyyellow @mcorless @LuvLayne @maemandy @Csevenup @Barb1024 @jesvideo @Jerrys @LiLTrish @lrice999 @Harriet @Spence0 @Nick51 @TIJAY49 @terryhatch @BronxMike @wilkiet @LatriceL @JulieW @Ashhole @Gailpricharf @wjhellyer @DäveStëin @Lesab2901 @Olveraangel @dadachip @Anna2641 @realtor @ferret205 @bamajrfan19 @eddymarz37 @Jeannigus @RY1970 @MichelleM12 @rickster215 @Terrydka71 @papajohn1001 @mredfern @Langleton @DEEPBLUEJAMEY @KikiGoodman @Selkie319 @Debra1974 @ColHenry @sarausa0106 @Deiralan @Dmcfnp @LarryVote @usa-meds @Johnboy23 @oliver56 @kaygod23 @sunnie02 @brento1234 @kathywaterman59 @wizzy78 @manropesheer @Mexicanpiloto @kathwestermann30 @JohnMultipleSclerosis @Eden_James @piper977 @Chandana @ChefForThree @Charlotte @Izebluke @reggaereggie @dianereese @MackPotter @puredatahub @dule0664 @shirleygiven968 @andreprince @Rebecca_khumaloN @kaicenat @naturall @Daniel33 @Pabbpe3 @JamesAlex @KennethMoore @ClarenceWilliams @RampRomas @tylerjames19211 @mimi45 @tapemazipan

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avatar Selkie319

Selkie319

06/11/2026 at 6:30 PM

Good advisor

avatar Selkie319

Selkie319

Last activity on 06/11/2026 at 6:30 PM

Joined in 2024


54 comments posted | 27 in the Good to know group

5 of their responses were helpful to members


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My advice is that you just don't judge people. Everyone has something, some story, some issue. Just don't judge and hopefully no one will judge you.


“I wish people knew this about living with a chronic illness…” https://www.carenity.us/forum/other-discussions/good-to-know/i-wish-people-knew-this-about-living-with-a-chronic-illness-6739 2026-06-11 18:30:44

avatar ahvccenter

ahvccenter

07/01/2026 at 9:46 AM

Good advisor

avatar ahvccenter

ahvccenter

Last activity on 07/24/2026 at 9:25 AM

Joined in 2026

Interested in CHARGE syndrome since 2026


70 comments posted | 22 in the Good to know group

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Managing a second, unseen full-time job is a necessary part of living with a chronic condition. While attempting to appear "normal," it necessitates ongoing planning, symptom monitoring, and energy restriction. Many suffer from the emotional burden of a changing condition and other people's lack of empathy.


“I wish people knew this about living with a chronic illness…” https://www.carenity.us/forum/other-discussions/good-to-know/i-wish-people-knew-this-about-living-with-a-chronic-illness-6739 2026-07-01 09:46:07

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Survey

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On a scale of 0 to 10, how likely are you to recommend Carenity to a friend or colleague?

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