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“I wish people knew this about living with a chronic illness…”
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Selkie319
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Selkie319
Last activity on 06/11/2026 at 6:30 PM
Joined in 2024
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My advice is that you just don't judge people. Everyone has something, some story, some issue. Just don't judge and hopefully no one will judge you.
ahvccenter
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ahvccenter
Last activity on 07/17/2026 at 9:14 AM
Joined in 2026
Interested in CHARGE syndrome since 2026
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Managing a second, unseen full-time job is a necessary part of living with a chronic condition. While attempting to appear "normal," it necessitates ongoing planning, symptom monitoring, and energy restriction. Many suffer from the emotional burden of a changing condition and other people's lack of empathy.
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 07/16/2026 at 5:34 PM
Joined in 2023
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Hello everyone 🌿
I hope you’re doing as well as possible today.
Living with a chronic illness often means carrying realities that aren’t visible from the outside. Fatigue, pain, uncertainty, mental load… many of these things don’t show up, yet they shape daily life in powerful ways.
Sometimes, what’s hardest isn’t the illness itself, but the misunderstandings, assumptions, or silence from others who don’t truly know what it’s like.
💬 Let’s open the conversation:
Your words may resonate with someone who feels unseen or misunderstood and help build empathy where it’s needed most. 💙
Looking forward to reading your thoughts,
Somya, from the Carenity team 🌼
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