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  • How do you talk to your children about your condition?
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How do you talk to your children about your condition?

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avatar Somya.P

Somya.P

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10/01/2024 at 11:00 PM

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avatar Somya.P

Somya.P

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Last activity on 07/02/2025 at 3:28 AM

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660 comments posted | 234 in the Good to know group

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Hello everyone,

How are you doing today?

Talking to children about your health condition can be very difficult. You want to be honest, but it’s not always easy to find the right words or know how much to share.

How have you explained your illness to your children or younger family members? What tips do you have for discussing serious health topics in a way that’s age-appropriate and reassuring?

@Susan-Jane @Dcass22 @Kayla8 @Steve1697 @Charrell10835 @Dgra417 @Mommaz @TinaMcdowell1973 @shhiggins326 @Painful311 @NavyMom0904 @Jessie135 @Mrspeedy @Beelllaa96 @Bailey92 @Toyox26 @mommaof2 @biancaolivas22gmail.com @kaitlynsavard @Jmerritt @ShannieJ @GregFrakes @TiffanyBoydston @MonaJane @NikkiDilliner @jlawrence2686 @November @Ealicea2339 @klt1984 @mikeand75 @Whizper @griffin43 @abbykab @taustin8997 @Fiona82 @Adamschiffer @Jamie0406 @Emmarose75 @Ximena1218 @dan.varady @nikki42 @Tammon71 @letitworkitselfout @Cheermom70 @chrissyburke @Jackie1981 @nikki1974 @Tnd121798 @CHICKEN @rosienarv @Geetika @Christa.J @Edparks32 @sflorez77 @Kathyl @Scottleager @Soulfly1 @maradenski @Diego82 @doomiii @Sikrissybk524 @Cookie! @Taco26 @Dobbsmom @Alyssalukas23 @mmjepsen1969 @Sunset94 @Melleepippin @Bettyphillips @Anadrew @Chrispalmer73 @ghetto6905 @Melon'sMama @RobertsJ1992 @andreadreamer @Avasdad @jpgilger @Lovelylesslie @Ldurham @Fleet5 @Mcastro26 @jrosellagain @paulsarahwin @DeAnn99 @djmercer @tammyru2005 @grace73p @kisslamarre @Somya.P @MelStill78 @KenWeed43 @SleepBetterNation @Hdymond @Kim761 @Sueof3 @jenneighbs @melonsmama @Smilerml @ColHenry @Amandatd 

Your experiences could help others navigate this sensitive conversation. Looking forward to hearing your thoughts!

Take care,

Somya from the Carenity team 🌼

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avatar Mrspeedy

Mrspeedy

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10/01/2024 at 11:08 PM

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avatar Mrspeedy

Mrspeedy

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Last activity on 07/01/2025 at 5:01 PM

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I don’t have kids or younger family members

See the signature

Jason McNeil


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-10-01 23:08:58

avatar Adamschiffer

Adamschiffer

10/02/2024 at 12:28 AM

avatar Adamschiffer

Adamschiffer

Last activity on 06/22/2025 at 9:30 PM

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4 comments posted | 4 in the Good to know group


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I have had discussions with my wife and two boys about my illness. I have been very careful to tell them that it isn’t genetic and just because I have it doesn’t mean that they are going to have it.


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-10-02 00:28:09

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avatar Somya.P

Somya.P

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10/11/2024 at 3:16 PM

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avatar Somya.P

Somya.P

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@Adamschiffer Thank you for sharing! It can be a tough conversation, but it’s great that you’ve approached it so thoughtfully. If you don't mind sharing more, how did they respond when you first brought it up? 

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Somya from the Carenity team


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-10-11 15:16:06

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avatar Adamschiffer

Adamschiffer

10/11/2024 at 5:17 PM

avatar Adamschiffer

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Last activity on 06/22/2025 at 9:30 PM

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I’ve been diagnosed with SPMS for some 29 years. I’ve been married a little over 28 years and we have two boys together, a 26 year old and a 17 year old. I’ve been quite open about my health with them and tried to explain every symptom of MS I have and/or get.

I tell my kids that it isn’t genetic and they are not very likely to end up with MS. A little bit more likely because I have it than the average bear but it is still under 1% for them.


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-10-11 17:17:56

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avatar Somya.P

Somya.P

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10/14/2024 at 12:03 PM

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avatar Somya.P

Somya.P

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Last activity on 07/02/2025 at 3:28 AM

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660 comments posted | 234 in the Good to know group

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Hi @Adamschiffer,

Thank you for sharing your story. It’s great that you’ve been open and honest with your boys about your MS, it must bring some peace of mind to know that their risk is still very low. How have they responded to learning about your condition over the years?

Take care, 
Somya from the Carenity Team 🌼

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Somya from the Carenity team


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-10-14 12:03:37

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avatar Chadshep

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11/17/2024 at 11:57 PM

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avatar Chadshep

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I don't tell anyone only my wife knows it's a struggle with myself so I don't put my problems on others I just deal best I can


How do you talk to your children about your condition? https://www.carenity.us/forum/other-discussions/good-to-know/how-do-you-talk-to-your-children-about-your-condition-5875 2024-11-17 23:57:53

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