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Have you ever felt pressured into treatments that didn’t feel right?
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Johnboy23
Johnboy23
Last activity on 05/12/2025 at 5:30 PM
Joined in 2025
Patient, Friedreich ataxia since 2025
Other condition: Multiple sclerosis
4 comments posted | 2 in the Good to know group
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Yes I am going through it now I have moderate to severe cerebellar atrophy What has been missed for 5 years
now they want me to go on a gluten diet they admitted it won’t help but they get some money for each person they can get on it I have point blanked refused now they don’t want to treat me any more I still won’t do it
Shortstuff
Shortstuff
Last activity on 05/12/2025 at 9:13 PM
Joined in 2024
2 comments posted | 2 in the Good to know group
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Yes I am 69 high blood pressure high anxiety but have severe nasal allergies which go into moderate asthma my allergy dr and pulmonary dr have been pressuring me to take the xolair shots I am afraid because you have to have epi pen by you all times and other side effects I am alone all day no friends or family close by then to make matters worse my lady Dr said to Friday because I lost weight from nerves over all this and don’t go out on high pollen days that I am dying and if I don’t try this drug or change my way of living I won’t live to the of summer I have been struggling to breathe all weekend even more scared my husband shows very little compassion my only friend left isn’t talking to me
Selkie319
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Selkie319
Last activity on 05/12/2025 at 12:58 AM
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31 comments posted | 17 in the Good to know group
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I've had a number of incidents over the years. Sometimes I tell the doctor all my reasons for having concerns and I get told to take the medication or the service anyway. Like they don't listen.
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Shortstuff
Shortstuff
Last activity on 05/12/2025 at 9:13 PM
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2 comments posted | 2 in the Good to know group
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@Selkie319 same here but I am having anxiety attacks scared trying to find another option but cant
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Somya.P
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Somya.P
Last activity on 05/12/2025 at 10:45 PM
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Hello everyone, how are you doing?🙋
Sometimes, managing a chronic illness can mean having to make tough decisions about medications. While doctors aim to recommend the best treatments, you might occasionally feel pressure to take medications that don't feel quite right for your body, your lifestyle, or your comfort level.🧐
Maybe you've experienced side effects that made you hesitant, or perhaps you felt rushed into a treatment plan without enough time to consider other options. It can be challenging to speak up, especially when you want to trust your healthcare team. Yet, finding a balance between medical advice and your own well-being is so important.
👉 Have you ever felt conflicted about starting or continuing a medication?
👉 How do you handle situations where you feel uncomfortable with your treatment plan?
👉 Have you found ways to advocate for yourself in conversations with your doctor?
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We d love to hear your experiences and advice!💬
Take care!
Somya from the Carenity team🌼