Patients Multiple sclerosis
Topic of the discussion
Posted on 7/4/19 5:34 PM
But now having MS I hate summer and also being in this wheelchair I really hate summer and not being able too do so much that other people can do with out worries of being so hot you can barely move
Beginning of the discussion - 7/4/19I loved summer when I was young https://www.carenity.us/forum/multiple-sclerosis/living-with-multiple-sclerosis/i-loved-summer-when-i-was-young-1161
Posted on 7/4/19 8:41 PM
i hear you summer is hell for me too now especially nowadays i feel summer is hotter than ever or maybe i never paid attention before when i was younger/before diagnosis but honestly, this year sees brutal and causes so much sadness that i can't do what i used to be able to do.
Posted on 7/4/19 11:16 PM
@Hidden username you are not alone in this feeling. There are many others who can empathize with you. While, I am not in a wheelchair, I am very sensitive to heat. My family says my house is "cold" but for me it is perfect.
The heat can cause me to flare up in symptoms. Some years ago, when I would still maintain active, I had to monitor because even an increase in body temperature from exercise, I could feel the exacerbation in my neurologic symptoms.
I used to enjoy hot showers.
Posted on 7/11/19 8:09 PM
@Hidden username Same here. I can rarely stand the heat most days and tend to stay inside now because of it, which causes me to miss out on a lot and that itself is sad since I am a mom of two wonderful children. I miss out on so much with them during the summer.
Ms has definetly changed my life.
Posted on 9/9/19 9:47 PM
I used to love summer and going to the beach. I hate it now. It has been so hot this summer I dont go outside unless I have to. How can staying in the house and out if the heat still make me feel so bad? This heat makes me feel like I’m dieing a slow death!
Posted on 9/23/19 3:16 AM
yeah we're all on the same boat with summers, although i don't recall summers being this hot! i stay indoors as much as i can get away with in the summer. or will just host gatherings in my backyard where i can go in and out as Iplease :)
Posted on 9/23/19 3:21 AM
it's almost fall :) I'm in the midwest and it's starting to cool.
Posted on 9/24/19 3:40 AM
@Hidden username right! Happy first day of fall everyone, here is to cooler weather!