Miller-Dieker syndrome
Forum

Current topics:

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Is a third wave of COVID-19 inevitable?
  Hello everyone,  How are you today? Many of us in the US want to turn the page and join together as a family to celebrate the festive season. But it's important that we not lose sight of what we a
• - Dealing with isolation
  Hi, friends: If you are ( I pray you are) listening to the CDC recommendations and adhering to them, how are you dealing with your changed emotions? Any creative and new suggestions? Cheri