Patients Lupus
How do you do it? How do you keep going with all of the pain, symptoms, and complications from lupus
- 51 views
- 4 times supported
- 4 comments
All comments
Patients Lupus
Unregistered member
Hello everyone. I’m new to this platform and I just wanted to give a brief synopsis of the symptoms that are the most agonizing for me. Severe joint pain, migraines at least 15 days out of a month, depression, fatigue, scalp flares (lesions), anxiety, and inflammation. Now, I’ve done my fair share of work, but over the last 2 years I’ve been on a slippery slope downhill. Each morning is becoming more and more difficult to get out of bed. I’ve taken medications on top of medications on top of medications for each of my individual symptoms. I got fired due to leaving my job because of a bad migraine. (Hell, I had to get out of those fluorescent lights and home before I was unable to drive). Honestly? I’m sick of this shit. People, especially employers don’t understand what the hell we actually go through, and I don’t expect them to. So tell me, how does a person with no money afford doctors visits and prescriptions? I’ve been off meds for almost a year and a half and i can barely work due to all the pain I’m in. If I can’t work, I can pay for doctor’s visits. Everything is so expensive these days. I’ve been denied for disability twice, I mean, what gives? I seriously need help. In early 2017 I was suicidal and diagnosed with depression. I’m trying to lead a better life, but it’s hard ya know? I’m 25 and I’m not getting any younger, I want my quality of life so bad... so tell me... How the hell do you do it?!