One of the main treatments for Fabry disease is enzyme replacement therapy with agalsidase-alpha (Replagal) or agalsidase beta (Fabrazyme) to help normalize kidney function, heart function, and blood supply to the brain.
How has your experience been with enzyme replacement therapy?Which treatment have you taken?How about the effects, good and bad?
Enzyme therapy has been the only treatment I have been on since being diagnosed besides taking some medicines for the pain in my hands before I was diagnosed. My experience has been good I guess... I no longer get the pain in my hands and my vision is pretty much back to normal, so I am happy. The only compliant I have is that it is not the most comfortable thing and it is a chore to get done... but if it helps me be healthy and remain health I am all for it, right?
Share your experience with enzyme replacement therapy?https://www.carenity.us/forum/fabry-disease/treatments-for-fabry-disease/share-your-experience-with-enzyme-replacement-therapy-10072019-05-31 04:30:09
Lee__R
Community managerGood advisor
Lee__R
Community manager
Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,336 comments posted | 3 in the Fabry disease Forum
2 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef
One of the main treatments for Fabry disease is enzyme replacement therapy with agalsidase-alpha (Replagal) or agalsidase beta (Fabrazyme) to help normalize kidney function, heart function, and blood supply to the brain.
How has your experience been with enzyme replacement therapy? Which treatment have you taken? How about the effects, good and bad?