Endometriosis is often called an “invisible” condition, but for many, the pain and fatigue are anything but. What makes things even harder is how long it can take to get a proper diagnosis. Some wait years. Others are misdiagnosed again and again.
How long did it take before you were officially diagnosed?
Did doctors listen to your symptoms early on?
What advice would you give someone still looking for answers?
My endo led to two d&can't and later on a finding of HPV cervical cancer and a lapo- hysterectomy only able to save my right ovary. I was 30 in 2011. I did testing in Oct my second husband passed 11-19-11 by July 2012 I lost my ability to ever have a child/children. Don't ever stop asking question or taking the testing. I made that mistake and my heart aches every time a new baby comes into my family or friends. I often feel cheated and can't afford adoption or anything around it. I am now 46 and I bed of anyone here reading this don't give up or settle; I did and it haunts/ hurts me since.
How long did it take to get an endometriosis diagnosis?https://www.carenity.us/forum/endometriosis/living-with-endometriosis/how-long-did-it-take-to-get-an-endometriosis-diagnosis-66372026-01-31 23:46:05
Somya.P
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Somya.P
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Last activity on 01/29/2026 at 5:07 PM
Joined in 2023
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Hi everyone,
Endometriosis is often called an “invisible” condition, but for many, the pain and fatigue are anything but. What makes things even harder is how long it can take to get a proper diagnosis. Some wait years. Others are misdiagnosed again and again.
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Your story could help someone feel less alone, and more prepared to push for answers.
Somya from the Carenity team 🌼