YOU LOOK SO GOOD; HOW CAN YOU BE SO SICK!!!

Hi @mickey,

Thank you for sharing this. Living with symptoms that other people cannot see can be incredibly frustrating, especially when you're exhausted or in pain and hear comments like, “But you look so well.” Looking healthy on the outside doesn't necessarily reflect what someone is dealing with day to day.

You also mentioned feeling tired even after sleeping for 10 hours. That kind of persistent fatigue can have a huge impact on everyday life, and I imagine it must be especially difficult alongside the limitations you're already experiencing.

I'd love to hear from others:

• Have people ever questioned how unwell you are because you “look healthy”? How do you respond?
• Do you still feel exhausted after a full night's sleep, and how does that affect your daily life?
• For those living with lupus, how do you personally manage sun or heat sensitivity while still being able to get out and do the things that matter to you?

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Mickey, I also hope you get the opportunity to meet and spend time with your grandchildren. ❤️

Take care,
Somya from the Carenity team 🌼