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I missed thanksgiving due to pain

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AS1218

11/30/2023 at 12:13 AM

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AS1218

Last activity on 02/05/2024 at 1:39 AM

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I missed Thanksgiving this year to do an ankylosing spondylitis flare. It wasn't the first holiday I've missed, but everytime I do, I still feel sad and defeated.

My family says they understand, but I don't know if they really do. It's hard to explain what my flares feels like. It’s like running a race, then all of a sudden you hit a rock with your toe, then stumble into a sticker bush. The bush leaves stickers in your clothes and surprise! There is a wasps nest in the bush too. You run away to try to avoid being stung but its no use- you still get stung. So now you are still running with thrones in your clothes and a covered in wasp stings and a broken toe. You just don't catch a break!

I have to stop everything I am doing when I flare. The pain spreads to all different parts of my body. The flare is more than my daily chronic pain. To understand, it is something that you must take time in my skin.

I just wish I could get rid of this illness! It is so frustrating to live with!

Did anyone else miss thanksgiving due to their pain this year?

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LizziB

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11/30/2023 at 11:16 PM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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HI @AS1218

How are you doing today?

I am sorry to hear about your struggles with AS and chronic pain. I think many on Carenity can relate to your description of what it is like to live with chronic pain. As soon as you feel like you are stabilizing, flares sneak up and put you off course once again.

@Bionicmedic @hopperchristie81 @Bswann84 @BrendaSue @love2023# @Hotmama64 @PhyllisR @Randy4672 @DenMN1 @Lilduck @jims84970 @Sarabiddy2023 @danirose @Eaglèmom59 @Dkrivera824 @AliciaKrouse @Galestorm720 @Johnfiske @badd302 @Tawnie @PaulaB. @Bettyfld95! @@Taterhead1964 @shellshockershaw @LoLuben @Debbiehawkins @KTurner @Kadi2022 @Bee1030 @Cwitton1 @amforbes27 @Kjallstar99 @Rhofer811 @Mamag1960 @Kepi53 @Colleen3399 @Melissa @Frozen24330 @Stewgirl @kskbkb @KMNagel @Mlangdon @Mollie1! @Mysharona @Anne1972 @Bluegirl53 @VictoriaRiegel @SheikhaO @Tracy54 @Arhembree @420FlowerChild @Bossbitch @Susies @Wendymitch66 @sheardefiance @Laj1963 @Phylholly

What about you? Have you had to miss a holiday, family event, or important meeting due to chronic pain? Can you relate to @AS1218 ?

Remember, you are not alone, let's share experiences and any advice to get through these life disappointments!

Take care,

Lizzi from the Carenity team

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LizziB

I missed thanksgiving due to pain https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/i-missed-thanksgiving-due-to-pain-5600 2023-11-30 23:16:24

Wendymitch66

12/01/2023 at 12:50 AM

Wendymitch66

Last activity on 10/17/2024 at 4:02 PM

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That is the best explanation of chronic pain I have ever heard. I will be borrowing that for a long time.

I missed thanksgiving due to pain https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/i-missed-thanksgiving-due-to-pain-5600 2023-12-01 00:50:27

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AS1218

12/18/2023 at 6:13 AM

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AS1218

Last activity on 02/05/2024 at 1:39 AM

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56 comments posted | 8 in the Chronic pain Forum

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@Wendymitch66 thanks for reading!

I missed thanksgiving due to pain https://www.carenity.us/forum/chronic-pain/living-with-chronic-pain/i-missed-thanksgiving-due-to-pain-5600 2023-12-18 06:13:41

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dan.varady

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10/17/2023 at 2:30 PM

@Somya.P My neurologist gave me a script through the state dispensary for aid with sleep. It helps with sleep. The script is for low dose THC, so it aids with minor pain. I have learned through my trials of product that CBD gummies help with sleep, but not pain. In my state, CBD gummies can be bought at local corner stores.

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Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

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MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

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dan.varady

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10/17/2023 at 2:30 PM

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Armor2

05/13/2023 at 5:38 PM

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MountainMan

Edited on 03/25/2021 at 8:23 PM

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I missed thanksgiving due to pain

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