Topic of the discussion
Posted on 4/3/20 12:00 AM
How are you doing?
Biotherapies (Enbrel, Humira, Remicade, Simponi...) are treatments that lead to a decline in immune response (immunosuppressants).
Patients who use these treatments are therefore at a higher risk of complications due to the COVID-19 infection.
Are you currently undergoing biotherapy and have an autoimmune disease (ankylosing spondylitis, rheumatoid arthritis, chronic inflammatory bowel disease, psoriasis...)? Then this discussion is for you!
Please don't hesitate to ask any questions you may have, or to share information on biotherapies in the context of the pandemic!
Our survey now closed, but you can check out the results right here: COVID-19 & Biologics: Patients Share Their Experience
If you haven't seen already, here is our comprehensive article on the coronavirus and chronic illness where you will find a lot of useful information: Coronavirus and Chronic Illness
Beginning of the discussion - 4/20/20Biotherapy and COVID-19: Has the virus had an impact on your treatment? https://www.carenity.us/forum/chancroid/living-with-infection-inflammation-immune-syst/biotherapy-and-covid19-has-the-virus-had-an-impact-on-your-treatment-1761
Posted on 4/20/20 5:20 PM
@Courtney_J Hi Ya'll, I'm taking Cosentyx (biologic) for my AS. I haven't had any reaction at all, not even in the beginning of my treatment. I take a real concoction of drugs (20 different drugs per day) more at weekends.
Maybe my biologic has given me some immunity from the COVID-19 virus? I don't know. Time will tell? I hope y'all are staying safe and sane! <3
Posted on 4/29/20 4:48 PM
I'm on Enbrel injections, I thought about maybe stop the treatment during the crisis to limit the risk but it wasn't a good idea. So far, I can't complain about any real negative impact. I'm staying at home with my wife. She goes to the store for the both of us and I try to stay busy doing some yard and house works. I miss seeing our friends or just going for a walk but it's a small price to stay healthy... Hope everyone is safe here!
Posted on 4/30/20 3:05 PM
I don't have any problem with my treatment for the moment but my doctor told me to avoid any non-steroidal anti-inflammatory drugs. So dealing with pain is a bit more complicated... Did someone got the same recommendation? I don't know if it is totally forbidden or if I could take some pills if I stay at home
Posted on 5/5/20 10:32 PM
@copa20 Same, no problem getting my meds, but my doctor also mentioned NSAIDs. I think there was a study in Europe that found that ibuprofen and others may aggravate the virus, so I think out of precaution our docs want us to take acetominophen instead. I think the CDC hasn't found conclusive evidence that they do worsen it, but better safe than sorry, right? Hope you all are ok and doing well!
Posted on 5/7/20 8:20 PM
Hi there folks,
Does anyone take skyrizi or know anything or anyone as to how they reacted to it or is helping?
Posted on 5/29/20 4:58 PM
@jasmine1092 I read the same thing about ibuprofen. The last article I saw said that Nonsteroidal Anti-Inflammatory Drugs can help to relieve certains symptoms if paracetamol doesn't work. But long-term use of NSAIDs has been linked to higher rates of heart attack, heart failure, stroke, acute respiratory so it obviously increases the risk.
Posted on 6/9/20 4:40 PM
How are you today?
How are you coping with your conditions in this post lockdown period? Have you changed your treatments or routines? Have you seen a change in symptoms? Feel free to share here!
Also, if you haven't seen it already, we recently published the results of our COVID-19 & Biotherapy survey you may have participated in! I'll link it here for you if you're interested: COVID-19 & Biologics: Patients Share Their Experience
Let us know what you think of the results! Do they surprise you? Are they as you thought? Feel free to share your thoughts in the comment section below the article!
Posted on 7/5/20 6:30 PM
My routine hasn't changed a bit. I'm staying at home now not because I want so but because I need so.
And another thing that has changed is that masks are a new must-have accessory in everybody's bag.. At first I didn't think that there will be such a need in them so I didn't bother to buy more. That was a mistake. So one day I ordered a whole pack of [link removed by Moderator for violation of community standards] so that I could carry with me wherever I go at least 2 of them, just in case.
[Link removed by Moderator for violation of community standards]