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Patients Ankylosing spondylitis

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Member Carenity • Community manager
Posted on

With AS, one of its unfortunate symptoms is a lack of energy. This can increase the difficulty in those diagnosed with AS from being able to do what one used to be able to do prior to the diagnosis, such as walking for distance, traveling, attending family gatherings, attending social events, etc.

Do you suffer fatigue/lack of energy as a result of your diagnois of AS? Is there anything you have had to change in your daily routine or habits due to this fatigue/lack of energy? If yes, can you share what thing you have had to change/alter?

How do you cope with this fatigue and lack of energy? Any tips for others?

Thank you for participating.

Beginning of the discussion - 10/5/18

Ankylosing Spondylitis and Energy
1

Member Carenity
Posted on

in the beginning before i was diagn0sed i was so weak i wanted to either take a break from breathing or be put on a ventilator i went to the er and was laughed at i was told i probably i had the beginning of a uti i had no symotoms and was on 10 mg of prednisone i am a retired rn

Ankylosing Spondylitis and Energy
1

Member Carenity
Posted on

So many hospitals and ER's are so cruel. I know I won't know for sure if I have AS,  even though my dna has markers on so many chromosomes and I have MTHFR mutation , homozygous double compound.   I am only 61 and was going blind from cataracts in both eyes.  I had progressed to a 2 out of 4 which represents complete blindness. I now have new lens and I hope and pray Dec 10th to get to the bottom of this disease when I finally am able to see a Rheumatologist.  I have hernaited discs in cervical , one between thoracic and lumbar , and the rest lumbar.  My cervical spine has already started to fuse, and my neurosurgeon told me there is nothing they can do to help make it better.  Of course neither he, nor my chronic pain Dr. will tell me really what this is :(  .   I changed chronic pain Docs and he is sending me straight to the Reheumatologist.  Thank God  for him !   My previous Chronic Dr. said, " Oh , I could give it a long name, but it is really just part of old age" !   Well,  in that case Dr. I said,  I have had old age all my life !   Good Lord !   Pray for this 61 year old kid please !!! 

Ankylosing Spondylitis and Energy
Member Carenity
Posted on

I’m often exhausted and have zero energy,  and when I Munster up enough to do anything physical I cannot do it very long

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