Alport syndrome
Forum

Current topics:

• - An easy way to control your renal diet
  There is a great free program available at dialysismenuplanner.com to help you with your diet. If you have just been diagnosed with kidney disease your doctor has you on a low protein diet. Did you k
• - I wish to help someone with my frezenius 2008 dialysis machine.
  i no longer need it and want to bless someone with it at a small cost. just contact me if you are in need and we'd talk more.
• - Bladder Infection - help
  Hi everyone; I have had a bladder infection for going on 3 months and have taken anti-biotics, and had a cystoscopy . I have been taking pre- and pro-biotics, drinking cranberry juice and drinking l

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19: Should we fear a second wave?
  Hello everyone, How are you doing today? As countries throughout the world are and have been coming out of lockdown and life is begining to return to "normal", many people and health authorities ha