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Discover the experiences of our members on this page. You can filter these testimonials by disease using the search bar above. Finally, by registering, you will be able to comment on these stories and share yours to help other members!

Featured testimonials

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

Hidradenitis Suppurativa

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

Jun 3, 2026

In this powerful and inspiring testimony, 28-year-old Elisa shares her journey living with hidradenitis suppurativa (HS) and ankylosing spondylitis.Passionate about hairstyling, alternative music,...

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HIV-positive since childhood: Sophie-Elena’s extraordinary journey

HIV/AIDS

HIV-positive since childhood: Sophie-Elena’s extraordinary journey

Dec 1, 2025

Sophie-Elena, a 36-year-old stay-at-home mother living in Switzerland, offers a unique perspective about life with HIV. Born in Romania and abandoned at birth, her early years were marked by illness...

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The latest testimonials published

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Jun 3, 2026

Hidradenitis suppurativa: “You’ll live with this disease your whole life, but make it your strength.”

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Dec 1, 2025

HIV-positive since childhood: Sophie-Elena’s extraordinary journey

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Oct 29, 2025

“I’ll be bipolar until the day I’m buried, but I’m in recovery”: Paula-Rose’s story of strength and hope

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Sep 17, 2025

MS: “It's deeply linked to stress, so it's important to take care of your emotions.”

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Sep 3, 2025

Treatment-resistant depression: "I relapse systematically at the same time every year."

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Aug 20, 2025

Crohn’s disease: “I went through a total proctocolectomy… and it’s not over yet.”

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Aug 13, 2025

Fibromyalgia: “Misunderstanding and skepticism are the hardest things to deal with in this invisible illness.”

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May 30, 2025

Multiple sclerosis: “I’m strict with my rest because without it, I can’t function at all.”

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May 2, 2025

Autism and disability: "At the core of me, there is only light and love."

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Mar 26, 2025

Primary Ciliary Dyskinesia (PCD): “I've gotten better at saying ‘no, I'm actually not fine and here's why.’”

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Feb 19, 2025

Crohn’s disease: “Resilience is about getting up each day and choosing to keep fighting, even when it feels impossible.”

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Feb 5, 2025

The daily life of a family facing their child’s type 1 diabetes: Jessie’s story

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