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- NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?
NAFLD/NASH: What was your diagnosis experience? Did you get a plan of care or prognosis?
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cinner
cinner
Joined in 2018
I was told during a gall bladder attach at the ER! Same for me, “you have a mass in your liver, probably just benign fat! No explanation, no plan of care, nothing!
Rpsampson
Rpsampson
Joined in 2018
@Rpsampson wow
Unregistered member
Same for me was given no information, no,meds, no plan of care or even what to expect.
Rpsampson
Rpsampson
Joined in 2018
I was told that for Nash there is nothing out there for me now so I was directed to a research study so that’s what I am doing now. I am a person who is helping the doctors or research company’s trying to find a solution medication that work. Now I have 11 months on a med called selonsitib.
kicknit
Good advisor
kicknit
Joined in 2018
@Rpsampson how is that medication doing for you?
I have never heard of it? Is it a drug in the experimental stage?
Do you know what it is supposed to do in regard to treating or controlling NASH?
Rpsampson
Rpsampson
Joined in 2018
Kicknit
You can google selonsitib and you will find lots on line but remember this is a drug still in experimental stages and it is not FDA approved at this time. The hope here for everyone especially the Nash patients is that the drug will help the liver heal especially when you’re at stage 4 like I am. There are other drugs out there to also In study’s so we have lots of hope today. I learned also that 800 IU of vitamin E is also beneficial combination with proper diet and exercise. As of right now my azt and ast blood work numbers are very good so for now I will continue what’s working. Thanks
Dapaluska
Dapaluska
Joined in 2018
After reading these posts I feel very fortunate to have had an excellent doctor who took a great amount of time explaining everything. I learned some time later that takeing Allopurinol can help fatty liver disease. Does anyone else have any information about this.
Juhree67
Juhree67
Joined in 2018
I was diagnosed 5 years ago,,, was told nothing. What I've learned had been through my own research.
BeachLife18
Good advisor
BeachLife18
Joined in 2018
giggles
giggles
Joined in 2018
hi.
i just joined. i wanted to know more about fatty liver. i found out that i have it. i found out that i have it but look at my file online. if my doctor told about it i don;t remember. is there any thing i can do to make it better. stop eating certain foods etc. thanks margaret
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Lee__R
Community managerGood advisor
Lee__R
Community manager
Joined in 2018
One of the main complaints of those diagnosed with Nonalcoholic fatty liver disease is that the doctor spent little to no time explaining to them their condition, the prognosis, and the plan of care at the appointment where they received their diagnosis or where they were told the findings of the medical studies revealing nonalcoholic fatty liver disease.
What has been your experience? Did you have a similar experience or did your doctor explain to you the condition? The plan of care?
Share your experience with others.