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Patients Multiple sclerosis
Does this happen to you?
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Painhurt68
Painhurt68
Last activity on 08/04/2024 at 4:22 AM
Joined in 2020
2 comments posted | 2 in the Multiple sclerosis Forum
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I have so much pain in my neck, back legs, ankle. I at night, I want to cry. The pain is awful no one understands. The thoughts go thur my mind is crazy sometimes, feel alone why.
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I'm so sorry that you are going through this. The pain can be unbearable at times. If I didn't find my strength in my relationship with Jesus, I would never make it through. The other thing that has helped me was to get with a really good doctor who has worked on my diet and added supplements to control the inflammation in my body. I am currently only on two medications, besides my supplements. I still deal with pain and muscle spasms on a daily basis, but no where to the degree I used to. I no longer eat dairy, sugar or grains, and I avoid all night shades. I has been a game changer. I will be praying that you will find relief with your pain, and that you will find connections so you don't feel so alone.
MS_283
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MS_283
Last activity on 11/23/2022 at 9:27 AM
Joined in 2018
57 comments posted | 36 in the Multiple sclerosis Forum
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@soravec I've had incidents like this before, but very fast like a few seconds delay between my mind telling my body what to do and my body actually doing it. It's an extremely strange sensation. Could it just be a delay between brain and muscle because of the damage done by MS?
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That's what I am thinking it probably is. Sometimes it is longer than others and I think those are the times that are more bothersome. It helps knowing that it happens to others
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I have lived with MS for over 25 yrs, but recently I have started to experience times where my body seems to "forget" how to do things. An example, I was at the doctor and was told to take a deep breath. I knew exactly what the doctor wanted me to do, but I couldn't get my body to do it. I have had it happen more than once where I was holding something and went to put it down, and my hand didn't respond to put it down. There have been other things, but you get the idea. AM I crazy? Has this happened to anyone else? Is this normal for MS?