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Have you ever been told your symptoms are "not real" or "it is all in your head" ?

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Have you ever been told your symptoms are "not real" or "it is all in your head" ?

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Lee__R

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04/19/2019 at 2:46 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,340 comments posted | 8 in the Fibromyalgia Forum

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Hello members,

Unfortunately, some of the most common misconceptions about fibromyalgia, including by some in the medical community, are that the symptoms are all in the patient's head or that the condition is not real.

Many individuals diagnosed with fibromyalgia say that at one time - or more - during their journey to diagnosis, they were not taken seriously by a medical provider. Many share the experience of having been told by a medical provider, after having presented themselves with the pain and symptoms of fibromyalgia, that it is in their head, that there is nothing wrong, that they should seek out psychiatrist, or something similar.

Have you ever experienced this misconception: What happened? How did you react? How did it make you feel?

Share, comment, and discuss below.

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toomuchpain

05/07/2019 at 4:38 AM

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toomuchpain

Last activity on 10/18/2022 at 6:00 PM

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35 comments posted | 18 in the Fibromyalgia Forum

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Yes. It took me multiple times to different doctors before I got this diagnosis. I was told that they could find nothing wrong with me, I was checked for RA and OA and neuropathy. I was told to see psychologist. When I finally found a doctor who diagnosed me with Fibromyalgia, I had some family members who still did not believe that I had an actual condition and some were not understanding at all when I had bad flares and need help.

Have you ever been told your symptoms are "not real" or "it is all in your head" ? https://www.carenity.us/forum/fibromyalgia/symptoms-and-complications-of-fibromyalgia/have-you-ever-been-told-your-symptoms-are-not-real-or-it-is-all-in-your-head-903 2019-05-07 04:38:58

curtaincall

05/08/2019 at 2:59 AM

curtaincall

Last activity on 11/29/2022 at 2:26 PM

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37 comments posted | 17 in the Fibromyalgia Forum

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I never felt that a doctor did not "believe" that I was in pain, but I did feel because there was nothing showing from studies that my general practitioner just did not know really what path to send me.

fibrome

05/08/2019 at 4:05 AM

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fibrome

Last activity on 02/23/2024 at 12:23 PM

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I experienced this when at the physical therapists. I was explaining to them that I felt like I was not progressing with physical therapy and in fact, I felt like it was getting worse. I could see the disgust on the physical therapist's face... I then overheard her talking with her PT aide telling her that there was anything PT could do for people who have nothing wrong with them. Hearing that hurt my feelings and I never went back.

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Armor2

05/13/2023 at 5:38 PM

@HelloKitty I started taking kratom when I was diagnosed with cervical dystonia, it means I have constant pulling of my neck and shoulder muscles. Botox is the primary treatment , 6 to 8 shots targeting muscles but its hit and miss. I told a friend about this and he told me about kratom, so I went to a kratom shop and talked to the owner. He learned I was an Army Veteran and sold me some capsules. Unbelievable the kratom knocked out the pain and relieved some of the spasms and pulling that was 5 years ago, and I am still taking it for chronic pain. I have found the vendors to trust and a fbook website to share experiences with others. Like all things kratom must be handled with common sense, and reading info on the web helps educate us all. IT IS THE ONLY THING THAT HELPS WITH MY CHRONIC PAIN

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MountainMan

Edited on 03/25/2021 at 8:23 PM

Yes I agree. Im on morphine and Hydrocodone/Acetaminophen and yours as well. I have some others also. If I want to work in the back yard, I am sleep mode if I set down. The next morning and at night is paying with great pain. Its a hard road in many ways. We have to keep going best as we can. Have a smile and good day to you. I have the stimulator too.

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Armor2

05/13/2023 at 5:38 PM

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MountainMan

Edited on 03/25/2021 at 8:23 PM

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