Topic of the discussion
Posted on 11/20/18 10:37 AM
Any hope of finding medicine for lupus as clinic reports ?
Beginning of the discussion - 11/20/18Medicine for lupus https://www.carenity.us/forum/lupus/your-opinion-on-lupus-treatment/medicine-for-lupus-605
Posted on 11/20/18 11:33 AM
@Hidden username have you ever tried plaquenil? I was on it for 4 years. I had no obvious side effects until it started to affect my peripheral vision and my opthamologist took me off. It works for many people. Other than that there IVIG, or steroids. That’s all I know about.
Posted on 11/21/18 8:39 PM
Yes I've been on that medicine now coming to 3 yr's but it has affect my hip joint.I can't walk. My doct5has recommended for hip replacement.
Posted on 11/22/18 6:17 PM
Wow @Hidden username I have had many steroid infusions and my neurologist was going to do another course for migraine headaches but I refused because I have cataracts and I think it’s from all the steroids. Lately I’ve had leg, back and foot pain ... I wonder if it’s related to steroids or plaquenil ... I do have disc degeneration which might explain the back (but it’s just started) but I’ve also been in numerous car accidents and fallen many many times.
@Hidden username please let me know what your doctor thinks. Best to you.
Posted on 11/22/18 7:31 PM
Am totally confused because if I don't take this steroids I worsen.I take 400 gm of plaquenil,20 gms of predisolin ,15 gm if methroxate once a week.
Currently am not taking any medicine on hip joint. Am in pain.my cartilage is gone in my hip joints.
Posted on 11/22/18 7:36 PM
Any medicine for hip joint?
Posted on 2/8/19 11:25 PM
steroids work to definitely keep down the inflammation but I have also heard it weakens the joints overtime...