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Chronic fatigue: patients' experiences and solutions

Apr 15, 2019

When you have a chronic disease it is common to be fatigued and to experience painful symptoms, severe side effects, and anxiety... Daily life can be difficult and lead to real exhaustion. We wanted to know more and allow Carenity members to express their opinions on this subject.

How do they perceive their fatigue and its causes? What solutions have they implemented? What is the role of the doctor? Read our article to find out what patients think! Also, identify and suggest new ways to fight chronic fatigue.

Chronic fatigue: patients' experiences and solutions

Fatigue that is both physical and mental

Let's start with an overview of the fatigue experienced by survey respondents.

88% - feel physically tired


73% - feel nervously tired

88% of our members feel physically tired. 73% also reported experiencing nervous and psychological exhaustion. The stress of diagnosis, waiting for each appointment, and the difficult administrative procedures can undermine patients' morale and energy.
On a scale of 1 to 10 (10 corresponding to extreme fatigue), patients rated their fatigue as 7. For them, the party responsible is clear: for 89% of respondents it is the disease; the disease plays a major role in their physical and psychological condition.

Symptoms of the disease are responsible for patient fatigue

We wanted to know more precisely what caused fatigue for those diagnosed with chronic diseases.

   83% - symptoms of the disease

   31% - side effects of treatments

   25% - social pressure

   22% - treatment

Our survey video!

 

The impact of fatigue on patients' daily lives

We wanted to know more precisely how fatigue impacted the daily lives of individuals with chronic diseases. For 98% of patients, fatigue has a strong impact on family and social life.


99% - social life


98% - family life


90% - intimate life


81% - professional life

All aspects of patients' daily lives are affected by chronic fatigue. Some members have even experienced embarrassing or dangerous situations because of their condition, for example, falling asleep at the wheel: "I refuse to go out if it takes more than 20 minutes to drive. One day, I was driving my child back to his internship and I was very, very scared." 

Solutions against chronic fatigue

Patients have tried to implement solutions to fight chronic fatigue. 62% have even discussed it with their general practitioner and 47% with another specialist. Our respondents took charge of their health, even though 42% of them did not benefit from the exchange with the doctor. 59% of the members occasionally or often use sleeping pills. Here are their other solutions:

   50% - more sleep

    30% - do less activities

   27% - energizing supplements and relaxing activities

   22% - a rich diet

What our members expect: more advice and alternative medicines

"In my opinion, health professionals should take this concern into account and possibly suggest elements that relax us and make it easier to fall asleep."

"It's up to me. I have to reduce my activities so that I can spread them out better over the week."

"Doctors should direct us towards alternative medicines or suggest taking supplements, herbal remedies etc.

"If the doctors could explain to me the cause of this fatigue, it would reassure me. Doctors and specialists could better take this fatigue into account and could try to find solutions".

"I don't think there is a solution, fatigue is an integral part of my illness."

"Listening and guidance to an appropriate professional, include in the care path of sophrology, acupuncture..."

"I think I need to better acknowledge my fatigue and actively work at reducing it as well as accept it. As my acceptance plays a large role in getting my head round the idea of working at improving it. Also speaking to someone who could possibly understand my fatigue would really help me."

 

How about you... Are you tired?

What is your solution against fatigue?

Survey of 2,862 Carenity members in France, United Kingdom, Italy, Spain, Germany and the United States in March 2019.

avatar Lee__R

Author: Lee__R, Community Manager

Lee is a Juris Doctor and Doctor of Physical Therapy. Now the Community Manager of Carenity US, he strongly believes that the platform has to be a haven and a tool for patients seeking information, advice or just a friendly encounter.

Comments

on 4/22/19

I have Chrons Disease and use to suffer Chronic fatigue. Was hospitalized twice for it. Since going to a holistic doctor I no longer have it.

on 4/22/19
I'm tired so often that even when I get some sleep I seem to end up falling asleep and taking naps in the middle of the day almost all the time....
on 5/1/19

I am new to this site but reading about the problems with  fatigue from all you people has helped me understand more why i feel so tired sometimes the emotional part of having cancer can drain the body's energy. I was diagnosed with stage 1 high grade bladder cancer i had 4turbs 9bcgs it was going well this week i going. To start 3 more bcgs but the they were stopped cause a new mass 

 is inside the bladder wall just came back from mri i guess most of you already know what the waiting does wishing for the best ready for the worst consent battle 

on 6/4/19

Hi all,  Yes. I get very fatigued, I suffer from Type 2 diabetes and I find myself without energy most of the times, and at night I have issuse with my knee's they have like this vibration to them when my legs are lying flat, I have to raise my knees slightly on a pillow in order not to feel such vibrations...I also find that I cannot relax and can't seem to fall asleep until 3:30 a.m. Its a daily cycle of not getting enough rest..

on 7/28/19

depression patient and a friend she is on Fluvoxamine 100,,but sleeps 15 hours in the 24 hour , body pain all time, headache,

 eat more, when awake only play with her 4 pets dogs. dont like new freinds, Dont like excirse.

really frostrating,  advice adive please 4 years now

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